A comparison study of autism spectrum disorder referrals 1997 and 1989.
ASD referrals doubled in eight years mostly because we started seeing girls, older kids, and milder cases—so update your screening lens, not your panic level.
01Research in Context
What this study did
Baker (2002) compared every autism referral in one Australian region in 1997 with those from 1989.
The team counted the kids, noted age, sex, and how severe the autism seemed.
Same clinic, same catchment area, just eight years apart.
What they found
Referrals doubled. Kids came in at older ages. More girls showed up.
Many of the new cases were mild—what we now call Asperger or PDD-NOS.
The boy-to-girl gap shrank from 6-to-1 to 4-to-1.
How this fits with other research
May et al. (2018) later tracked the same region with Medicare files. They show the gender gap kept closing through 2016, proving the trend did not stop.
Gal et al. (2012) saw a three-fold rise in Israeli registry data across similar years. The upward curve looks the same on two continents.
Fullana et al. (2007) in South Wales found classic autism rates flat while Asperger diagnoses rose. This matches C’s note that milder cases drove the boom.
Rutherford et al. (2016) add why girls were missed: they are referred later than boys even when symptoms are present. Later referral explains the slow narrowing of the ratio.
Why it matters
Rising numbers do not always mean more autism genes. They can mean better radar.
When you screen, remember girls and older kids were once invisible. Add sex-aware questions and widen your age net. Expect more “mild” profiles who still need help with social skills and anxiety.
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02At a glance
03Original abstract
A number of overseas studies have indicated an increase in the prevalence of Autism Spectrum Disorder (ASD). In the Australian Capital Territory, information (number, age, sex, final diagnosis) was gathered on all children referred for suspected ASD to Child and Adolescent Mental Health Service during 1997, and the findings were compared with those from a similar study in 1989. It was found that (1) there was a 200% increase in positive diagnoses of ASD in 1997 despite a 0.5% decrease in population, (2) there was a wider age range in the 1997 cohort, (3) there was a 26% increase in milder cases in 1997, and (4) the ratio of boys to girls decreased from 8:1 in 1989 to 3.5:1 in 1997. These findings are compared with those overseas, and questions are raised for further exploration.
Journal of autism and developmental disorders, 2002 · doi:10.1023/a:1014892606093