Whose needs are we meeting? Results of a consumer satisfaction survey of persons with developmental disabilities in Colorado.
Colorado’s 1991 survey mapped eight service areas but gave no happiness score; later work shows personal budgets and small homes raise satisfaction and community participation.
01Research in Context
What this study did
A Colorado team mailed a survey to 247 residents with developmental disabilities. Ages ranged from babies to 72 years old. The form asked how happy people were with eight service areas like housing, work help, and therapy.
What they found
The paper only lists the number of people who answered. It does not say if most people were happy or unhappy. No score or ranking is shared in the short summary.
How this fits with other research
Caldwell et al. (2007) later tracked families who got their own budgets to buy services. After nine years these families still said they were happier and had fewer unmet needs than a wait-list group. The 1991 snapshot did not link money to happiness, but the 2007 study shows personal budgets can keep satisfaction high.
Friedman (2023) reports that Medicaid now spends about $47,000 per person with IDD each year, mostly on day and residential supports. The 1991 survey did not show dollar amounts, so the new figures let you see what states now pay for the very services people rated.
Dinora et al. (2020) found that people in sponsored residential homes joined more community activities than those in larger facilities. This turns the old satisfaction list into action: pick smaller homes if you want better participation outcomes.
Why it matters
You can use the eight service domains as a quick checklist during intake. Ask the same questions today, then compare answers to the later studies. If satisfaction is low, look at individualized budgets and sponsored residential options first. These next-step moves are backed by longer and newer data that the 1991 paper simply did not have.
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02At a glance
03Original abstract
Results of one state's attempt to survey consumers and/or their families regarding their level of satisfaction with existing services, their needs for alternative or additional services, and their perceptions of overall quality of life are presented. Two hundred forty-seven individuals with developmental disabilities ranging in age from 0-72 years were interviewed. Information on consumer satisfaction and levels of integration, productivity and independence were measured for the following services: case management, residential, education, vocational, health, individual support, transportation, and caregiver support.
Research in developmental disabilities, 1991 · doi:10.1016/0891-4222(91)90014-j