Service Delivery

Home and Community Based Services (HCBS) waivers: a nationwide study of the states.

Rizzolo et al. (2013) · Intellectual and developmental disabilities 2013
★ The Verdict

This paper is the first national phonebook of Medicaid waiver services for people with IDD—use it to see what your state will and will not pay for.

✓ Read this if BCBAs who help families apply for Medicaid waiver funds or write treatment authorizations.
✗ Skip if Clinicians who only work with private-insurance clients.

01Research in Context

01

What this study did

Peters et al. (2013) read every Home and Community Based Services waiver application. They looked at 88 plans from 41 states plus Washington, DC.

The team listed every service states promised to fund for people with intellectual or developmental disabilities. No trials, no treatment—just a national catalog.

02

What they found

Residential habilitation and day programs topped every list. Beyond that, the menus looked like patchwork quilts—no two states matched.

Some waivers paid for behavior supports, others for respite, others for job coaches. The paper gives you the full shopping list for each state.

03

How this fits with other research

Friedman (2017) and Friedman (2023) ran the same tally for later years. They show the same big-ticket items—residential and day habilitation—while total spending more than doubled.

Friedman et al. (2025) zoomed in on mental-health dollars. They found nearly one billion set aside for ABA and crisis services, proving waivers can fund behavior-analytic care even though Peters et al. (2013) barely mentioned it.

Lakin et al. (2010) adds historical context: between 1998 and 2008 Medicaid moved money out of large institutions and into these same HCBS waivers, setting the stage for the 2013 snapshot.

04

Why it matters

If you write behavior plans for adults or children with IDD, this map tells you which services your state already covers. Use the list when you justify ABA, respite, or supported employment in treatment plans. Check the later Carli updates to see funding trends you can cite in budget requests.

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Open your state’s waiver application, find the line that lists “behavioral supports,” and quote it when you submit your next prior authorization.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

In fiscal year (FY) 2009, the Medicaid program funded over 75% of all publicly funded long-term supports and services (LTSS) for individuals with intellectual and developmental disabilities (IDD) in the United States ( Braddock et al., 2011 ). The majority of spending was attributed to the Home and Community Based Services (HCBS) Waiver program. In FY 2009, federal-state spending for the HCBS Waiver program reached over $25.1 billion and constituted almost half of total funding across the nation that year ( Braddock et al., 2011 ). Considerable effort has been spent investigating Medicaid program expenditures, however, due in part to the unique and state-specific nature of HCBS programs, national-level analysis on the types of services offered to individuals with IDD has not been available. A full understanding of the supports available through the Medicaid program is critical as the United States considers strategies for economic recovery among competing state and federal budget priorities. This article presents the results of an analysis of 88 Medicaid HCBS Section 1915(c) waiver applications for individuals with intellectual and developmental disabilities in 41 states and the District of Columbia. It analyzes IDD data and trends close to the real time intent of states and empowers advocates in presenting timely solutions to real-time issues.

Intellectual and developmental disabilities, 2013 · doi:10.1352/1934-9556-51.01.001