Service Delivery

Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities.

Friedman (2023) · Intellectual and developmental disabilities 2023
★ The Verdict

Medicaid pours $47k per person with IDD into waivers, yet most dollars still fund day and residential programs instead of evidence-based employment services.

✓ Read this if BCBAs writing employment goals or helping families navigate waiver budgets.
✗ Skip if Clinicians who only provide clinic-based ABA and never touch waiver funding.

01Research in Context

01

What this study did

Friedman (2023) counted every Medicaid Home- and Community-Based Services waiver dollar spent on people with intellectual or developmental disabilities in 2021.

The team looked at all 50 states and added up costs for 861,038 people. They sorted spending into service types like residential help, day programs, and job supports.

02

What they found

Total spending hit $43.2 billion, or about $47,315 for each person.

The biggest slice paid for group homes and in-home aides. Day habilitation came next. Job services got a smaller share.

03

How this fits with other research

Domin et al. (2013) warned that only a large share of people with IDD hold real jobs. Carli’s numbers show waiver dollars still follow that pattern—most money goes to day and residential care, not work.

Wehman et al. (2014) proved supported employment raises job rates for youth with IDD. Carli’s data reveal the cash is there; it just isn’t flowing to those proven job models.

Barton et al. (2019) found kids use fewer than half of approved ABA hours. Carli’s report hints the same leak may hit adult services—funds are approved but may not reach clients.

04

Why it matters

You now have a price tag: $47k per client. Ask where it goes. If the goal is community work, shift more waiver funds toward supported or customized employment shown to work by Wehman et al. (2014) and Wilson et al. (2023). Track hours like Barton et al. (2019) did to be sure money turns into real services.

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Open your client’s waiver budget, compare the residential/day line items to the employment line, and propose one funding swap toward supported employment.

02At a glance

Intervention
not applicable
Design
other
Sample size
861038
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

Medicaid Home- and Community-Based Services (HCBS) 1915(c) waivers are the most prominent funding mechanism for the long-term services and supports (LTSS) of people with intellectual and developmental disabilities (IDD). This study's aim was to conduct an in-depth national analysis of fiscal year (FY) 2021 HCBS 1915(c) waivers for people with IDD. In FY 2021, over $43.2 billion was projected for the HCBS of 861,038 people with IDD. An average of $47,315 was projected per person with IDD annually. The services that received the most funding were: residential habilitation; supports to live in one's own home; and day habilitation. HCBS is necessary so people with IDD can live and thrive in their communities.

Intellectual and developmental disabilities, 2023 · doi:10.1352/1934-9556-61.4.269