Service Delivery

Health Services Use and Costs for Americans With Intellectual and Developmental Disabilities: A National Analysis.

Fujiura et al. (2018) · Intellectual and developmental disabilities 2018
★ The Verdict

Prescription drugs for chronic conditions are the biggest cost driver for adults with IDD—tackle these before requesting more therapy hours.

✓ Read this if BCBAs who help adults with IDD and sit on funding or waiver planning teams.
✗ Skip if Clinicians who only serve young children with no chronic health issues.

01Research in Context

01

What this study did

Fujiura et al. (2018) pulled national health-surveys and insurance claims for adults with intellectual or developmental disabilities. They compared every doctor visit, pill, and dollar to adults without IDD.

The goal was to see where the money goes and why some costs run higher.

02

What they found

Adults with IDD had mixed bills—some higher, some lower—than the general group. The big ticket was prescription drugs for chronic conditions like diabetes, seizures, or mood disorders.

These meds, plus the illnesses they treat, drove most of the extra spending.

03

How this fits with other research

Li et al. (2018) used the same national data and added body weight. They found obesity alone adds about $2,500 a year, stacking even more on top of the drug costs T et al. flagged.

Friedman (2023) updates the Medicaid picture: waiver spending reached $47,000 per person with IDD in 2021. That figure now includes the pricey prescriptions T et al. spotted, showing the trend keeps climbing.

Eussen et al. (2016) zoomed in on one drug class. In a single medical-home network, 60 percent of members with developmental disabilities were on antipsychotics—likely a big slice of the medication bills T et al. saw nationwide.

04

Why it matters

If you write behavior plans or advocate for funding, target chronic-condition and medication lines first. Ask for collaborative medication reviews, nursing consults, or diet programs. Small cuts here free up waiver hours for skill teaching, job coaching, or parent training.

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Schedule a nurse-led medication review for one high-cost adult client and add a referral for a weight-management or diabetes-education group.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability, developmental delay
Finding
mixed

03Original abstract

Health services and associated costs for adults with intellectual and developmental disabilities (IDD) were nationally profiled and the predictors of high expense users statistically modeled. Using linked data from the National Health Interview Survey and Medical Expenditure Panel Survey for the years 2002 through 2011, the study found a mixed pattern of differences in rates of service use and costs when compared to the general population depending upon personal characteristics, health status, and type of health care service. Prescription medication costs were the primary driver of total health care expenditures for Americans with IDD. The presence of secondary chronic health conditions and poor mental health status were the consistent predictors of high expense users across types of health care. Study results are discussed in terms of implications for more nuanced evaluations of health care costs and need for recurring surveillance of health care for Americans with IDD in the years following passage of the Patient Protection and Affordable Care Act.

Intellectual and developmental disabilities, 2018 · doi:10.1352/1934-9556-56.2.101