A National Analysis of Medicaid Home and Community Based Services Waivers for People With Intellectual and Developmental Disabilities: FY 2015.
Medicaid HCBS waivers pour the bulk of IDD money into residential and day hab, but your state’s priorities and dollars may look very different.
01Research in Context
What this study did
Friedman (2017) looked at every state’s Medicaid HCBS waiver plan for people with IDD in 2015.
The team counted how much money each state asked for and what services the dollars were meant to buy.
What they found
Residential habilitation and day habilitation grabbed the biggest slices of the pie in almost every state.
Yet the size of the pie and the way it was cut varied sharply from one state to the next.
How this fits with other research
Friedman (2023) supersedes these 2015 numbers by showing the same pattern six years later, only with bigger totals: $43 billion for 861,000 people versus $25 billion for 630,000.
Friedman et al. (2015) extends the picture by zooming in on mental-health line items from the same 2015 waivers; it finds those services are routinely under-funded and uneven across states.
Lakin et al. (2010) sets the stage by tracking the decade before, confirming the steady shift of Medicaid dollars out of institutions and into HCBS, which explains why residential and day hab now dominate the budget.
Why it matters
If you write behavior plans for adults or children with IDD, know that most waiver dollars flow to living supports and day programs, not to one-to-one ABA therapy.
Check your state’s waiver line items before you budget for extra staff or request authorizations; funding patterns in the next state may not match yours.
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02At a glance
03Original abstract
Medicaid Home and Community Based Services (HCBS) 1915(c) waivers are the largest source of funding for the long term services and supports of people with intellectual and developmental disabilities (IDD). National-level analyses of HCBS IDD waivers are crucial because of the large variance across states, the recent CMS rule and regulation changes (CMS 2249-F/2296-F), and the ever changing economic and political landscape. Therefore, the aim of this study was to examine state waiver priorities for people with IDD. In FY 2015, 111 waivers projected spending $25.6 billion for approximately 630,000 people with IDD. The services with the most funding were residential habilitation, supports to live in one's own home, and day habilitation. However, our analysis revealed large discrepancies across states and services.
Intellectual and developmental disabilities, 2017 · doi:10.1352/1934-9556-55.5.281