Remote vs. In-person Schooling during the COVID-19 Pandemic and Internalizing Symptoms among Children on the Autism Spectrum.
When COVID-19 closed schools, transition-age youth with autism lost every service, yet simple telehealth parent training still worked elsewhere.
01Research in Context
What this study did
Courreges et al. (2023) asked parents of high-school-age youth with autism what happened to services during the first year of COVID-19. They used open-ended interviews so families could tell the full story in their own words. The team focused on kids about to leave school, a group that already faces big service gaps.
What they found
Parents said no child gained any new therapy, class, or support after March 2020. Instead, many lost sessions or had to pay out of pocket to keep the help they had. Remote school often meant no speech, no OT, and no aide, even when the IEP promised them.
How this fits with other research
Martin et al. (2023) looks at odds with this picture. They showed 14 parents learned behavioral skills by Zoom and cut their kids’ problem behavior during the same period. The gap: Martin offered a ready telehealth program, while Audrey’s families were simply told services stopped. Neale et al. (2022) add the wider view—only 8 % of autism trials shut down, and most were drug studies, not day-to-day therapy. Together the three papers show services could keep going, but schools and clinics rarely made the switch. Pellicano et al. (2022) echo the mental toll, recording deep stress in autistic people of all ages when face-to-face support vanished.
Why it matters
If another crisis hits, you can’t assume schools will pivot online. Have a back-up telehealth vendor list ready now. Share parent-training log-ins like those in Martin et al. so families can start immediately. And screen caregiver stress at every contact—Faught et al. (2021) found these parents already run twice the normal distress rate even without a pandemic.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Email each high-school family your favorite three telehealth parent-training links today so they have a backup if in-person sessions halt.
02At a glance
03Original abstract
Services are critical for youth with autism spectrum disorder (ASD), especially during the transition to adulthood. Under the best of circumstances, though, it can be difficult to access needed adult services. With COVID-19, services were more difficult to obtain and retain. In this study, we explored parent perceptions of accessing new services and maintaining current services during the first year of the COVID-19 pandemic. Structured interviews were conducted with 65 parents of transition-aged youth (aged 16-26) with ASD living in three states (IL, TN, and WI) in the United States. None of the participants reported receiving new services during the pandemic, and many struggled to access services via online applications. In addition, participants reported that service suspensions and changes in modality (e.g., from in-person to telehealth) were spearheaded by professionals and not families. Participants, especially those in TN, were more likely to pay out-of-pocket for services during the COVID-19 pandemic to compensate for service disruptions. Implications for research and practice are discussed.
Research in autism spectrum disorders, 2023 · doi:10.1007/s10803-020-04816-6