Autism & Developmental

Quality of life of caregivers of children with autism in Qatar.

Kheir et al. (2012) · Autism : the international journal of research and practice 2012
★ The Verdict

Caregivers of autistic children in Qatar see their own health as worse, so a quick health check during clinic visits can catch parents who need extra help.

✓ Read this if BCBAs working with autism families in clinic or home settings.
✗ Skip if Practitioners focused solely on child skill acquisition without family contact.

01Research in Context

01

What this study did

Kheir et al. (2012) asked caregivers in Qatar to rate their own health and overall quality of life.

They compared parents of autistic children with parents of typically developing children.

The study used a short survey and simple ratings, not an intervention.

02

What they found

Parents of autistic children said their own health was worse than the comparison group.

Surprisingly, scores on general life domains were about the same for both groups.

The extra strain showed up mainly in how parents felt about their bodies, not in money or housing.

03

How this fits with other research

Later work backs this up and adds detail. Al-Janabi et al. (2025) surveyed 248 Iraqi parents and found mothers, younger parents, and those with chronic illness report the lowest quality of life.

Melegari et al. (2025) zoomed in on child behavior. They showed that sleep problems in young autistic kids and conduct issues in older ones are the top stressors for caregivers.

Mello et al. (2019) looked at U.S. preschool families. They also found family interaction was the weakest spot, matching Qatar’s health dip.

Together these studies say: caregiver strain is real, but the pain points differ by culture, child age, and parent health.

04

Why it matters

You already track the child’s progress. Add one quick item: ask the caregiver, “How is your health this week?” If the answer is poor, link them to respite, medical care, or parent support groups. A two-minute check can prevent burnout and keep the whole family in therapy longer.

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Add one question to your session note: “Caregiver health rating 1-5.” If ≤3, offer respite or medical referral.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
98
Population
autism spectrum disorder, neurotypical
Finding
negative
Magnitude
small

03Original abstract

INTRODUCTION: Caring for a child diagnosed with autism could affect the quality of life of the caregiver in various different ways. No previous research has assessed the quality of lives of caregivers of children with autism in Qatar. METHODS: Caregivers of a child with autism between 3 and 17 years old were recruited from child rehabilitation clinics in Qatar. The non-autism group was represented by caregivers of a typically growing child visiting a primary health care facility for a routine medical examination. Data collected from both groups included demographic and quality of life information for caregivers. RESULTS: A total of 98 participants consented to take part in the study. Fifty-six of these were caregivers of a child with autism and 42 were caregivers of a typically growing child. There was no significant difference between quality of life domains between the two groups of caregivers, but caregivers of autistic children rated their health as poor and likely to get worse (p < 0.05). CONCLUSIONS: This study provided some evidence for the impact of caring for a child with autism on the life of the caregiver. The findings should help health policy-makers in Qatar to provide better and more focused support to children with autism and their caregivers.

Autism : the international journal of research and practice, 2012 · doi:10.1177/1362361311433648