Service Delivery

Health-related quality of life among mothers of children with cochlear implants with and without developmental disabilities.

Zaidman-Zait et al. (2023) · Research in developmental disabilities 2023
★ The Verdict

Mothers of deaf children with cochlear implants and developmental disability have markedly lower quality of life—ramp up social-support services for this subgroup.

✓ Read this if BCBAs working with children who are deaf and have developmental disabilities in clinic or school settings
✗ Skip if Practitioners serving only typically developing children with hearing loss

01Research in Context

01

What this study did

Zaidman-Zait et al. (2023) asked mothers of children with cochlear implants to fill out a survey. Some kids also had a developmental disability. The team wanted to know if moms of these dual-diagnosis kids felt worse than moms whose kids only had hearing loss.

The survey measured health-related quality of life. That is how much energy, pain, mood, and social support a person feels day to day.

02

What they found

Mothers of children with both a cochlear implant and a developmental disability scored much lower on quality of life. Social support helped only this group. Moms of kids with just hearing loss did not get the same boost.

03

How this fits with other research

Al-Janabi et al. (2025) ran a similar survey with 248 Iraqi parents of autistic children. They also found that moms, younger parents, and parents of girls reported lower quality of life. The two studies together show that mothers of children with any developmental condition need extra support.

Emerson (2003) looked at mothers of children with intellectual disability in the UK. That paper found poverty and stress hurt moms, but mental-health screening rates barely rose once money problems were counted. Anat’s 2023 study adds that social support can still lift moms even when money is tight.

Meinzen-Derr et al. (2011) studied the same group of kids—those with cochlear implants plus developmental disability—but focused on language scores. Their work shows these children already lag behind matched hearing peers. Anat’s finding links that language gap to lower mom well-being, pointing to a family-wide impact.

04

Why it matters

If you work with families of children who are deaf plus have a developmental disability, plan to check mom’s quality of life at every visit. Offer concrete social supports—parent groups, respite hours, or quick calls from a peer mentor. One easy step: add a single question on your intake form—“Who helps you when you need a break?”—and follow up if the answer is “no one.”

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Add one question about social support to your parent intake form and schedule a follow-up call if the parent names no helpers.

02At a glance

Intervention
not applicable
Design
survey
Sample size
100
Population
developmental delay
Finding
negative
Magnitude
medium

03Original abstract

BACKGROUND: Cochlear implants (CIs) are widely used among children with severe to profound hearing loss. Raising a child with a CI presents unique challenges to the family, especially when the child has a developmental disability (CI-DD). AIMS: This study aimed to elucidate the relations between the functioning of children with CIs, their mothers' coping resources (i.e., social support and family-centered care), and maternal health-related quality of life (HRQoL). Also, it examined whether the presence of a DD in addition to the child's deafness moderated these relations. METHODS AND PROCEDURES: A sample of 100 mothers of children with CIs (54 in the CI-DD group) completed questionnaires regarding perceived social support, family-centered care, and HRQoL. OUTCOMES AND RESULTS: Mothers of deaf children with CIs and DD experienced lower levels of family functioning and HRQoL across all dimensions compared to mothers of deaf children with CIs without DD. In addition, social support was positively related to HRQoL only among mothers of children in the CI-DD group, indicating the protective role of social support. CONCLUSIONS AND IMPLICATIONS: Social support is an important coping resource, and psychosocial support is needed for mothers of children with CIs, especially for mothers whose children also have a DD.

Research in developmental disabilities, 2023 · doi:10.1016/j.ridd.2022.104397