Assessment & Research

Identifying feeding problems in mentally retarded persons: development and reliability of the screening tool of feeding problems (STEP).

Matson et al. (2001) · Research in developmental disabilities 2001
★ The Verdict

A five-minute carer checklist spots feeding danger in adults with ID and later proved useful for kids with autism too.

✓ Read this if BCBAs doing intake or feeding consults in day programs, group homes, or schools.
✗ Skip if Clinicians who only treat verbal clients with no feeding issues.

01Research in Context

01

What this study did

The team built a five-minute carer checklist called STEP. It flags five feeding-risk zones: choking risk, food refusal, poor chewing, picky eating, and low weight.

They tested the form with adults who have intellectual disability. Factor analysis and reliability checks showed the tool hangs together and carers agree on scores.

02

What they found

STEP gave clear factors that match real-life problems. Inter-rater reliability was high enough for clinic use.

No feeding treatment was tried; the paper only shows the scale works as a quick screen.

03

How this fits with other research

Meral et al. (2014) later kept the same 23 items but ran them in Turkish with kids on the spectrum. Their positive results extend STEP beyond English-speaking adults.

Sauna-Aho et al. (2025) scanned 31 ways to check swallowing in adults with ID and found only four tools with solid proof. STEP was not among the four, yet it still fills a gap: it is shorter and carers can give it free while the proven tools need special gear or clinics.

Farrant et al. (1998) and Baker et al. (2005) used the same build-and-test plan for epilepsy scales in the same population. Their pattern shows brief carer reports can be trusted for medical red flags, backing STEP’s approach.

04

Why it matters

You now have a five-minute screen you can hand to staff or parents during intake. If STEP flags aspiration risk or severe selectivity, you have data to fast-track the client to a swallow study or feeding team. Use it before you write goals so you target the right domain first.

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Print the 23-item STEP, give it to the direct care staff, and schedule a feeding eval for any item scored 2 or higher.

02At a glance

Intervention
not applicable
Design
methodology paper
Population
intellectual disability
Finding
not reported

03Original abstract

Feeding problems are extremely common among individuals with mental retardation. Palmer, Thompson, and Linscheid (1975) estimate that 33% of persons with mental retardation have severe feeding difficulties or problems. Furthermore, the consequences of untreated feeding problems can be severe if not fatal. Despite these numbers, little has been done to systematically identify these problems. The Screening Tool of Feeding Problems (STEP) was developed as a means to identify feeding problems presented by persons with mental retardation, and thus facilitate the process of identifying who would benefit from some type of behavioral or medical intervention. Items included in the STEP target feeding problems identified in the literature, in the areas of risk of aspiration, food selectivity, feeding skills deficits, food refusal and associated behavior problems, and nutrition related behavior problems. The current study describes the construction of this scale, provides psychometric data including test-retest and cross rater reliability, and factor analysis data.

Research in developmental disabilities, 2001 · doi:10.1016/s0891-4222(01)00065-8