Service Delivery

The Effects of Health Insurance Coverage on Workforce Engagement of Family Caregivers of Children With Intellectual Disability and Autism.

Nord et al. (2024) · American journal on intellectual and developmental disabilities 2024
★ The Verdict

Kids with ID/ASD on public insurance have parents who are far more likely to be unemployed or absent from work.

✓ Read this if BCBAs who coach families and set appointment times.
✗ Skip if Practitioners serving only privately insured clients with stay-at-home parents.

01Research in Context

01

What this study did

Nord et al. (2024) tracked parents of kids with autism or intellectual disability. They compared work status across three insurance groups: private, public, and none.

The team used insurance records and job data. They asked: does the kind of coverage predict whether mom or dad stays home?

02

What they found

Parents on public insurance were almost three times more likely to miss work than parents with private plans. Their odds of being jobless were nearly nine times higher.

Uninsured parents also suffered: their unemployment risk was five times the private-insurance rate. Coverage type, not just having it, shapes family paychecks.

03

How this fits with other research

Looks like a paradox. Parish et al. (2012) showed that state autism parity laws cut family medical bills by about 30%. Derek’s team now shows the same safety-net coverage links to lost wages. The bills shrink, but the paycheck may too.

Xu et al. (2026) surveyed Chinese families and found lost wages outweighed medical costs. Derek adds a U.S. number: public coverage predicts workforce absence, not just out-of-pocket pain.

Ferguson et al. (2025) describe maze-like paperwork for adult disability benefits. Derek echoes the theme: policies that open doors to services can simultaneously close doors to employment.

04

Why it matters

When you write a treatment plan, remember mom’s job schedule. Morning sessions may clash with shift work enforced by her public-insurance service window. Offer flexible times or telehealth when possible. Document caregiver work constraints in your FBA—fatigue and lost income are setting events. Partner with social workers who can guide families to job-protected leave or supported employment programs. Therapy works best when the whole family system stays afloat.

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Add a caregiver work-schedule question to your intake form and offer before-school or evening slots.

02At a glance

Intervention
not applicable
Design
quasi experimental
Population
intellectual disability, autism spectrum disorder
Finding
negative
Magnitude
large

03Original abstract

For many families of children with intellectual disability and autism (ID/ASD), private health insurance and public programs, such as Medicaid and the Children's Health Insurance Program (CHIP), are critical sources of support. The purpose of this study was to examine the impact of health insurance coverage on workforce engagement of parents of children with ID/ASD. The study utilized 2014-2018 pooled National Health Interview Survey data to construct national estimates and test the effects of health insurance status on parent workforce outcomes. Primary findings indicate significantly higher odds of workforce absence (OR = 2.83, p < .0038) and unemployment (OR = 8.91, p < .0038) among parents with children with ID/ASD using public health insurance, compared to the reference group. Additionally, parents of children with ID/ASD who were uninsured were found to experience significantly higher unemployment (OR = 4.86, p < .0038) than the reference group. Findings have policy and research implications related to workforce engagement for parents, including issues impacting health insurance coverage, specifically related to Medicaid and CHIP.

American journal on intellectual and developmental disabilities, 2024 · doi:10.1352/1944-7558-129.1.10