Service Delivery

The Association Between Continuity of Primary Care and Preventive Cancer Screening in Women With Intellectual Disability.

Plourde et al. (2018) · American journal on intellectual and developmental disabilities 2018
★ The Verdict

Steady primary-care relationships alone do not raise cancer-screening rates for women with ID — you still need active coordination and behavioral supports.

✓ Read this if BCBAs serving adult women with intellectual disability in health-clinic or day-program settings.
✗ Skip if Practitioners focused only on pediatric or crisis behavior plans.

01Research in Context

01

What this study did

Plourde et al. (2018) tracked women with intellectual disability and their primary-care visits. They asked: does seeing the same doctor more often help these women get cancer screens?

The team used insurance records to measure how steady each woman's care was. They then checked who had mammograms and Pap tests.

02

What they found

More steady care did not help. Women with the most steady care were no more likely to get a mammogram.

For Pap tests, the result was worse. The steadiest-care group had lower screening rates than women who saw many doctors.

03

How this fits with other research

Durbin et al. (2018) looked at the same continuity idea but for ER visits. They found steady care cut ER trips for adults with IDD. Same method, same year, opposite outcome.

Arana et al. (2019) dug into mammography only. They saw race mattered more than continuity. Hispanic and Black women with ID had higher screening than White peers, even without steady doctors.

McConkey et al. (2010) showed the big picture. People with ID land in the hospital six times more for problems that good primary care should catch. Together these papers say: steady care helps avoid crisis, but it is not enough for routine cancer screening.

04

Why it matters

You cannot assume a stable doctor equals good preventive care. Add extra steps: picture schedules, social stories, or chaperone calls. Track each woman’s last screen date yourself and start the referral. Pair continuity with behavior supports to close the gap.

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→ Action — try this Monday

Open each woman’s file, note the last mammogram and Pap dates, and schedule the next screen with a visual calendar for the client.

02At a glance

Intervention
not applicable
Design
quasi experimental
Population
intellectual disability
Finding
negative

03Original abstract

Women with intellectual disability have low screening rates for breast and cervical cancer. This population-based cohort study examined the association between the level of primary care continuity and breast and cervical cancer screening rates in women with intellectual disability. Data were obtained from the Institute for Clinical Evaluative Sciences and the Ontario Ministry of Community and Social Services. Neither high (adjusted OR [aOR] = 1.06; 95% CI: 0.88-1.29) nor moderate (aOR = 1.11; 95% CI: 0.91-1.36) continuity of care were associated with mammography screening. Women were less likely to receive a Pap test with high (aOR = 0.70; 95% CI: 0.64-0.77) and moderate (aOR = 0.81, 95% CI 0.74-0.89) versus low continuity of care. Improving continuity of care may not be sufficient for increasing preventive screening rates.

American journal on intellectual and developmental disabilities, 2018 · doi:10.1352/1944-7558-123.6.499