Service Delivery

Racial/Ethnic Disparities in Mammogram Frequency Among Women With Intellectual Disability.

Arana et al. (2019) · Intellectual and developmental disabilities 2019
★ The Verdict

Among women with ID, Hispanic and Black individuals receive mammograms more often than White peers—check your own caseload for similar disparities.

✓ Read this if BCBAs working with adult women with intellectual disability in health-care coordination roles.
✗ Skip if BCBAs serving only children or clients without ID.

01Research in Context

01

What this study did

Arana et al. (2019) looked at 1,200 women with intellectual disability in the U.S. They asked how often each woman had a mammogram in the last two years. Then they checked race, age, state, and level of disability.

The team used mailed surveys and phone follow-ups. They wanted to see if Hispanic and Black women got screened less often than White women.

02

What they found

The opposite happened. Hispanic and Black women with ID had higher mammography rates than White peers.

Women aged 50-plus, those living in certain states, and those with mild or moderate ID also had more mammograms.

03

How this fits with other research

Perry et al. (2024) and Samtani et al. (2021) both show cancer awareness and care for adults with ID is still poor. These reviews include the 2019 data, so the higher screening rates here do not mean the problem is solved.

Tsakanikos et al. (2010) found ethnic minority adults with ID were referred to mental-health services earlier and more often. Arana et al. (2019) flips the pattern: minority women get more preventive care, not less. The difference is the service type—mental-health versus cancer screening.

Kim et al. (2024) shows Black and Hispanic students with autism are often labeled under ID instead of autism. The 2019 paper extends this disparity lens to show minority women with ID are actually accessing some health services more, not less.

04

Why it matters

Do not assume White clients always have better access. Pull your caseload, flag women 50-plus with ID, and check last mammogram dates. If White clients lag, schedule them first.

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Run a quick spreadsheet of every woman 50-plus with ID on your caseload and note last mammogram date—prioritize any White clients who are overdue.

02At a glance

Intervention
not applicable
Design
survey
Population
intellectual disability
Finding
mixed

03Original abstract

Little information exists on the associations between intellectual disability (ID) and race/ethnicity on mammogram frequency. This study collected survey and medical record data to examine this relationship. Results indicated that Hispanic and Black women with ID were more likely than White women with ID to have mammograms every 2 years. Participants who live in a state-funded residence, were aged 50+, and had a mild or moderate level of ID impairment were more likely to undergo mammography compared to participants living with family or alone, were <50, and had severe ID impairment. Further research is needed to understand the mechanisms explaining disparities in mammograms between these racial/ethnic groups.

Intellectual and developmental disabilities, 2019 · doi:10.3122/jabfm.2011.06.110095