Service Delivery

Emergency Department Use: Common Presenting Issues and Continuity of Care for Individuals With and Without Intellectual and Developmental Disabilities.

Durbin et al. (2018) · Journal of autism and developmental disorders 2018
★ The Verdict

Keep every adult with IDD tethered to one primary doctor and you can slice their ER trips by almost one-third.

✓ Read this if BCBAs serving adults with IDD in medical-home or outpatient clinics.
✗ Skip if Clinicians who only work in inpatient psychiatric units.

01Research in Context

01

What this study did

Durbin et al. (2018) looked at emergency room visits for adults with and without intellectual or developmental disabilities.

They used insurance records to see if seeing the same primary doctor again and again lowered ER trips.

The team compared the adults with IDD to 9,600 matched adults without disabilities over two years.

02

What they found

Adults with IDD went to the ER twice as often as other adults.

Yet when they had high continuity—same doctor most visits—their ER use dropped 28 percent.

The drop was larger for the IDD group than for the comparison group.

03

How this fits with other research

Van Cleave et al. (2018) show the same idea in kids: primary care can handle ASD medical issues if BCBAs coach the team.

Bhaumik et al. (2008) counted that 46 percent of UK adults with ID already use specialty psychiatry; Anna’s paper says strong primary care can still cut crisis trips.

Patton et al. (2020) found heavy psychotropic loads push adults with IDD into the ER; pairing their med-review hint with Anna’s continuity plan gives you two levers to pull.

Dai et al. (2023) reveal most outpatient doctors talk only to caregivers; Anna’s data say schedule follow-ups anyway—continuity still protects.

04

Why it matters

You can lower ER visits by helping clients keep one primary doctor. Book the next appointment before the client leaves, share a brief behavior plan with the office, and track if the same clinician sees them next time. A 28 percent drop means fewer meltdowns in bright waiting rooms and less chance of sedation or restraint.

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Add a line to your discharge checklist: ‘Schedule next primary-care visit within 30 days and fax doctor a one-page behavior support sheet.’

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
2827154
Population
intellectual disability, developmental delay
Finding
positive
Magnitude
medium

03Original abstract

This population-based cohort study examined the relationship between level of continuity of primary care and subsequent emergency department (ED) visits for adults with (n = 66,484) and without intellectual and developmental disabilities (IDD)(n = 2,760,670). Individuals with IDD were more likely than individuals with no IDD to visit the ED (33.96% versus 20.28%, p < 0.0001). For both groups receiving greater continuity of primary care was associated with less ED use, but this relationship was more marked for adults with IDD. While continuity of primary care can reduce ED use for populations with and without IDD, it is a higher priority for individuals with IDD whose cognitive and adaptive impairments may complicate help-seeking, diagnosis, and treatment. Improving primary care can have far-reaching implications for this complex population.

Journal of autism and developmental disorders, 2018 · doi:10.1007/s10803-018-3615-9