Research Cluster

Medicaid HCBS for IDD Services

This cluster shows how states use Medicaid waivers to pay for home and community services for people with intellectual and developmental disabilities. It tells BCBAs where the money goes, how much each state spends, and why ABA and mental-health slots can be hard to find. Knowing these facts helps you plan programs, write better funding requests, and fight for more ABA dollars.

59articles
1987–2025year range
5key findings
Key Findings

What 59 articles tell us

  1. Medicaid HCBS waivers allocated roughly 47 thousand dollars per person with intellectual and developmental disabilities in 2021, mostly funding residential and day habilitation services.
  2. Black children with Down syndrome access Medicaid therapy services less often than white peers, with infants aged 0 to 2 showing the most significant underservice.
  3. Adults with intellectual and developmental disabilities with more everyday choice-making have lower emergency department use and better quality-of-life outcomes in Medicaid managed care.
  4. A coordinated cross-system care model reduced hypertension and hyperlipidemia rates in Medicaid adults with intellectual and developmental disabilities compared to usual care.
  5. ABA and mental health services are covered through HCBS waivers for about 190 thousand people with intellectual and developmental disabilities, but coverage is highly inconsistent across states.
Free CEUs

Get 60+ CEUs Free in The ABA Clubhouse

Live CEU every Wednesday — ethics, supervision, and clinical topics. Always free.

Join Free →

Frequently Asked Questions

Common questions from BCBAs and RBTs

Coverage varies by state, but waivers can pay for ABA, behavioral support services, residential habilitation, and crisis services. Nationally, about 190 thousand people with intellectual and developmental disabilities receive mental and behavioral health services through HCBS waivers. Check your state's specific waiver for what is covered.

State policy and individual demographics affect access. Start by finding out whether your state offers a self-directed option and whether the person meets the eligibility criteria. Connect families with case managers who specialize in self-direction, as the application process can be complex.

Documented barriers include systemic racism in referral patterns, lower provider rates in communities of color, language barriers, and lack of culturally responsive services. Addressing these gaps requires both individual advocacy and system-level policy reform.

Research shows that people with intellectual disabilities who have more everyday choice-making and better community participation have lower emergency department use. Investing in behavioral and support services reduces downstream medical costs.

Value-based payment ties reimbursement to quality outcomes rather than volume of services. Research shows quality metrics strongly predict service costs in IDD, which means high-quality providers should be rewarded and poor-quality ones should face consequences. Knowing this can help you negotiate contracts.