Service Delivery

Chronic Health Conditions Among Adults With Intellectual and Developmental Disabilities in a State Medicaid System.

McLean et al. (2024) · American journal on intellectual and developmental disabilities 2024
★ The Verdict

Adults with IDD in Medicaid carry very high heart-disease rates, so BCBAs must fold health monitoring into behavior plans.

✓ Read this if BCBAs and RBTs serving adults with autism, Down syndrome, or ID in day or residential programs.
✗ Skip if Clinicians who work only with young children or typically developing clients.

01Research in Context

01

What this study did

de Leeuw et al. (2024) looked at Medicaid records for adults with intellectual and developmental disabilities. They counted how many had heart disease and other long-term illnesses.

The team split the group by diagnosis: autism, Down syndrome, and other intellectual disability. Heart disease showed up in 39 to 75 percent of each subgroup.

02

What they found

Heart disease is common in more than one third of these adults. The rate climbs even higher for some diagnostic groups.

The study makes clear that chronic illness, not just IDD, is the norm for this population.

03

How this fits with other research

Morin et al. (2012) saw the same pattern in Canada twelve years earlier: adults with ID had more heart and thyroid trouble than the general public. The new Medicaid numbers confirm the trend in a U.S. system.

Reichard et al. (2019) used Medicare claims and also found heavy chronic-disease loads. Together the two payer studies show the problem is widespread, not tied to one insurance type.

Heller et al. (2011) reviewed exercise and nutrition programs for adults with ID. Their positive results suggest lifestyle services could blunt the high heart-disease rates now documented in the Medicaid data.

04

Why it matters

If you serve adults with IDD, plan for cardiac risk the same day you plan for behavioral goals. Build routine blood-pressure and weight checks into day programs. Pair exercise with clear pictorial health education. These steps can catch problems early and may cut emergency visits later.

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Add a quick vitals check at the start of your session and record results in the data sheet.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder, intellectual disability, down syndrome
Finding
not reported

03Original abstract

Despite a growing number of adults with intellectual and developmental disabilities (IDD) and documented risk for adverse outcomes as they age, little is known about the health and healthcare patterns of adults with different IDD throughout adulthood. This study uses Wisconsin Medicaid claims data to characterize health conditions among adults with IDD. Results indicate high prevalence of asthma, diabetes, heart disease, and hypertension. Heart disease rates were particularly high, having been observed among 39% of autistic adults, 64% of autistic adults with intellectual disability (ID), 67% of adults with Down syndrome, and 75% of adults with ID only. Given there are no known biological differences underlying increased morbidities among most people with IDD, developing inclusive prevention measures should be prioritized in future research.

American journal on intellectual and developmental disabilities, 2024 · doi:10.1352/1944-7558-129.5.331