Service Delivery

Health profile of aging family caregivers supporting adults with intellectual and developmental disabilities at home.

Yamaki et al. (2009) · Intellectual and developmental disabilities 2009
★ The Verdict

Family caregivers of adults with IDD carry much higher rates of obesity, diabetes, and heart disease than their peers, so their health needs screening and support too.

✓ Read this if BCBAs running adult day or in-home programs who write caregiver training goals.
✗ Skip if Clinicians working only with young children whose parents are under 35 and in good health.

01Research in Context

01

What this study did

Yamaki et al. (2009) asked older family caregivers about their health. All were still living with and supporting an adult with intellectual or developmental disabilities.

The team used a survey to check for common chronic problems like arthritis, high blood pressure, diabetes, and obesity. They compared answers to national data for women the same age.

02

What they found

Caregivers had more of almost every health problem. Rates of arthritis, hypertension, obesity, diabetes, high cholesterol, and activity limits were all higher than in the general population.

Oddly, the caregivers still rated their overall health as “good.” Only their psychological well-being dipped lower, especially among the oldest carers.

03

How this fits with other research

Kellett et al. (2015) extends this picture. They show that child behavior problems add extra weight risk for parents. Each one-point jump in problem behavior raised the odds of parent obesity by five percent.

Grindle et al. (2012) and Hsieh et al. (2014) flip the lens. They find that the adults with IDD themselves also carry very high obesity rates, especially women and those with Down syndrome. Together these papers form a loop: both caregiver and client face weight-related health danger.

Lin et al. (2013) adds that for younger disabled adults, BMI is the single best predictor of the “triple H” — hypertension, hyperlipidemia, and hyperglycemia. This supports the idea that weight control should be the first-line target for the whole household, not just the client.

04

Why it matters

You now know the home is a shared risk zone. If the adult client already shows obesity, the caregiver is likely next. Build joint goals: walk together, swap soda for water, track blood pressure at day program and at home. One small plan can protect two people at once.

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Add one caregiver health question to your intake form: “When was your last check-up?” If it’s over a year, hand them a local free-clinic list.

02At a glance

Intervention
not applicable
Design
survey
Sample size
206
Population
intellectual disability, developmental delay
Finding
negative

03Original abstract

The health status of 206 female caregivers supporting adults with intellectual and developmental disabilities at home was investigated using objective (i.e., presence of chronic health conditions and activity limitations) and subjective (i.e., self-perceived health status) health measures compared with those of women in the general population in 2 age groups: middle age (Ages 40-59 years) and older ages (> or =60 years). Prevalence of arthritis, high blood pressure, obesity, and activity limitations for the caregivers in both age groups was significantly higher than that for women in the general population. Middle-age caregivers reported a higher prevalence of diabetes and high blood cholesterol than their age peers from the general population. Despite the potential health challenges, the caregivers generally perceived their health better than that of women in the general population. Older caregivers' perceptions on their psychological well being, however, appeared to an exception. Implications regarding potential health risks for caregivers and residential services for persons with intellectual and developmental disabilities are discussed.

Intellectual and developmental disabilities, 2009 · doi:10.1352/1934-9556-47.6.425