Service Delivery

Empowerment and Resilience in Families of Adults With Intellectual and Developmental Disabilities.

Caldwell et al. (2018) · Intellectual and developmental disabilities 2018
★ The Verdict

When families feel empowered during the move from institution to home, they stay resilient and the adult with IDD keeps the placement.

✓ Read this if BCBAs who support adults with IDD during housing transitions or who train residential staff.
✗ Skip if Clinicians who only treat young children with no residential moves planned.

01Research in Context

01

What this study did

Burrows et al. (2018) asked families how they felt after moving an adult with IDD out of an institution and into a home setting.

They used a survey to measure two things: how much control and voice families felt they had (empowerment) and how well the family bounced back from stress (resilience).

All participants were relatives of adults with intellectual or developmental disabilities who had just made the big move.

02

What they found

Families who scored high on empowerment also scored high on resilience.

In plain words, when relatives felt heard and powerful during the move, they coped better afterwards.

03

How this fits with other research

Kocher et al. (2015) saw the same link in preschool families: parent empowerment predicted lower distress and higher well-being during school transitions.

Yamaki et al. (2009) adds a health angle. They showed that caregiving relatives of adults with IDD often suffer more arthritis, diabetes, and high blood pressure than peers. Burrows et al. (2018) extends this story by showing empowerment can buffer the stress that drives those health risks.

Lotan et al. (2010) supplies the ethical base. Their paper told professionals to embed respect and self-determination into every decision. Burrows et al. (2018) now offers survey proof that doing so pays off in stronger, more resilient families.

04

Why it matters

You may not control housing policy, but you do control how you treat families. Ask relatives what they want, let them lead meetings, and give choices at every step. These small moves build the empowerment that Burrows et al. (2018) links to long-term family strength. Stronger families mean more stable community placements and fewer crises for your client.

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→ Action — try this Monday

Open the next ISP meeting by asking the family to list two goals they want added before you suggest any.

02At a glance

Intervention
not applicable
Design
survey
Sample size
56
Population
intellectual disability, developmental delay
Finding
positive

03Original abstract

Using the family resilience model, we examined the association between empowerment, family member age, length of institutionalization, and resilience among family members of relatives with intellectual and developmental disabilities (IDD) following deinstitutionalization. Participants included 56 family members whose relatives with IDD recently transitioned to community living. Results strongly indicate empowerment plays a key role in positive family adaptation. Thus, following a relative's move from an institution to the community, empowerment is a promising form of protection that holds potential to increase family resilience. The results of the current study support the family resilience model as a foundation for future research regarding how families navigate significant transitions throughout the lifespan. Implications for practice and policy are provided.

Intellectual and developmental disabilities, 2018 · doi:10.1352/1934-9556-56.5.374