Service Delivery

Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism.

Burke et al. (2025) · American journal on intellectual and developmental disabilities 2025
★ The Verdict

Latino families of transition-age autistic youth feel strong at home yet know less about services and feel less able to change the system.

✓ Read this if BCBAs writing transition plans for high-school students with autism.
✗ Skip if Clinicians who only serve elementary-age clients.

01Research in Context

01

What this study did

Whaling et al. (2025) asked Latino and White parents of transition-age youth with autism about advocacy skills and service access.

They used a survey to compare how each group rated their own knowledge, family-level empowerment, and systemic empowerment.

02

What they found

White families said they knew more about available services and felt more able to change the system.

Latino families felt strong inside the home but less able to deal with schools or agencies.

Overall, the results were mixed: each group had one area where they scored higher.

03

How this fits with other research

Aleman-Tovar et al. (2022) extends these findings. Their interviews showed Latino parents want live or online help, not paper brochures.

Walsh et al. (2017) foreshadowed the gap. Their national survey found fewer than 10% of youth with ASD get proper health-care transition planning, with race and income driving the shortfall.

Mirzaian et al. (2025) adds context. Community groups in their survey named stigma and bias as top barriers, helping explain why Latino families in the target study felt less system power.

04

Why it matters

You now have data showing Latino families feel confident at home but lost in the system. Pair this with Janeth’s finding that they prefer live or online learning. Start small: invite families to a Zoom walk-through of transition forms, with Spanish captions and a Q&A. One session can boost both service knowledge and systemic empowerment.

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Host a 30-minute live Zoom tour of your district’s transition forms, with Spanish captions and a chat box for questions.

02At a glance

Intervention
not applicable
Design
survey
Sample size
94
Population
autism spectrum disorder
Finding
mixed

03Original abstract

Although access to services is critical for autistic youth, families often face challenges navigating service delivery systems. Barriers to service access are compounded among Latino families. Interventions which target advocacy ability (i.e., knowledge about services, perceived advocacy skills, and empowerment) may help families access services. By comparing advocacy ability and service access between Latino and white families, unique areas of strength and vulnerability can be identified, leveraged, and targeted in interventions. In this study, 94 parents (48 white; 46 Latino) of autistic youth completed surveys about their advocacy ability and service access. White (versus Latino) participants were significantly more knowledgeable about services, comfortable with advocacy, and empowered in the community/political system. Latino (versus white) participants reported significantly greater family empowerment.

American journal on intellectual and developmental disabilities, 2025 · doi:10.1352/1944-7558-130.6.490