Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers.
Distance, older age, and African American race predict missed autism clinic visits—reach out early with travel help.
01Research in Context
What this study did
Knight et al. (2019) ran a big survey at autism clinics. They asked why some families show up and others do not.
The team looked at travel miles, child age, race, and any past therapy. They tracked first visits and return visits.
What they found
Families drove farther, had older kids, or identified as African American missed more appointments. Kids who never had services before also stayed away.
Each barrier stacked up. More barriers meant fewer follow-ups.
How this fits with other research
Stephens et al. (2018) adds another layer. They show that family adversity, like abuse or neglect, delays diagnosis by months. F et al. gives you the map; L et al. tells you to watch for hidden trauma.
Barton et al. (2019) looked nationwide and found the same race gap. Black children start therapy years later. F et al. shows one reason: they miss clinic slots.
McGarty et al. (2018) agrees on travel pain but adds a fix. Universal screening and more providers shorten wait times. You can’t move the clinic, but you can screen early and offer telehealth.
Why it matters
Check your schedule every Monday. Flag families who drive over 30 miles, have kids older than six, or are African American. Call them first, offer bus vouchers or video intake. These small steps turn no-shows into starts.
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02At a glance
03Original abstract
We examined factors contributing to initial appointment attendance, alignment between parents' pre-visit and clinicians' diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services.
Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-019-04027-8