A survey of out-of-pocket expenditures for children with autism spectrum disorder in Israel.
Israeli families of kids with ASD shell out a median $4,473 a year, and severity plus parent education push the bill even higher.
01Research in Context
What this study did
Raz et al. (2013) asked 134 Israeli parents to list every shekel they spent on ASD care. Kids were 3-11 years old. Parents wrote down therapy bills, travel, special food, and equipment for one full year.
What they found
The median family paid $4,473 out of pocket in one year. One in four paid more than $8,000. Higher costs showed up when the child had severe symptoms or when parents held college degrees.
How this fits with other research
Ouyang et al. (2014) extends these numbers. They studied US families and added kids with ASD plus intellectual disability or fragile X. Those families lost more money and jobs than ASD-only families.
Alnahdi et al. (2026) is the successor. They looked at US Medicaid teens with ASD. As the teens aged, costs shifted from therapy visits to hospital and long-term care, showing the money story keeps changing.
Drahota et al. (2008) is the predecessor. They asked US parents of preschoolers with ASD about IDEA services, not cash. Still, both papers use parent surveys to map service gaps.
Why it matters
If you write treatment plans, know that families may quietly carry heavy bills. Ask about money stress at every review. Offer low-cost group parent training or telehealth when you can. Help parents find state funding lists. A five-minute chat can keep a child in therapy.
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02At a glance
03Original abstract
We describe a survey of children with ASD aged 4-10 years. The main dependent variables were out-of-pocket expenditures for health services and hours of therapy. Multivariable logistic regression models were used in order to find independent predictors for service utilization. Parents of 178 of the children (87 %) agreed to participate. The average annual out-of-pocket cost was $8,288, with a median of $4,473 and a range of $0-89,754. Higher severity of ASD and a parent with an academic degree were associated with higher expenditure. Having at least one older sibling, siblings without developmental disorders, regular education setting, lower parent education and low income were associated with lower expenditure.
Journal of autism and developmental disorders, 2013 · doi:10.1007/s10803-013-1782-2