Service Delivery

Medicaid expenditures for children with autistic spectrum disorders: 1994 to 1999.

Mandell et al. (2006) · Journal of autism and developmental disorders 2006
★ The Verdict

Medicaid kids with autism cost ten times more than other Medicaid kids, mostly from psychiatric hospital stays.

✓ Read this if BCBAs who write waiver applications or design crisis-prevention programs.
✗ Skip if Clinicians who only see privately insured clients and never touch funding issues.

01Research in Context

01

What this study did

Reyer et al. (2006) looked at Medicaid bills for children with autism from 1994 to 1999. They compared every dollar spent on these kids with dollars spent on other Medicaid children.

02

What they found

Kids with autism cost Medicaid ten times more than typical Medicaid kids. Almost all the extra money went to inpatient psychiatric stays, not to doctor visits.

03

How this fits with other research

Gaynor et al. (2008) saw the same cost jump in private plans—four to six times higher—not the full tenfold spike seen here. The gap shows Medicaid kids with autism are the most expensive group.

Cidav et al. (2014) later showed states can cut those high hospital bills. When states spend more on home- and community-based waivers, kids use less inpatient care and more outpatient therapy.

Ohan et al. (2015) flipped the view to families. They found private insurance pushes over five times more out-of-pocket costs onto parents than public Medicaid does. Together the papers draw a clear line: Medicaid bears high system costs but shields families best.

04

Why it matters

Use these numbers when you fight for waiver slots or outpatient crisis services. Show funders that every dollar moved to community care now can prevent a ten-times-larger hospital bill later.

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Add a line to your next treatment plan that links recommended outpatient hours to the documented ten-fold cost of inpatient care.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This study used data from 1994 to 1999 from one large county in Pennsylvania to estimate the Medicaid expenditures of children diagnosed with autism spectrum disorders (ASD) and to compare these expenditures with those of other Medicaid-eligible children. On average, children diagnosed with ASD had expenditures 10 times those of other children. Differences in expenditures were driven in large part by inpatient psychiatric care. Further research is required to determine whether hospitalized children could be served in less restrictive and less expensive settings. Lack of differences in ambulatory care expenditures suggests that children with ASD are not receiving additional primary care services that would be indicative of appropriately coordinated services as suggested by the medical home model.

Journal of autism and developmental disorders, 2006 · doi:10.1007/s10803-006-0088-z