Autism & Developmental

Emotional and behavioural adjustment in siblings of children with intellectual disability with and without autism.

Petalas et al. (2009) · Autism : the international journal of research and practice 2009
★ The Verdict

When autism and ID occur together, watch the typically developing siblings for lasting emotional problems.

✓ Read this if BCBAs working with autism-plus-ID cases in home or clinic settings
✗ Skip if Clinicians serving only ASD-only or ID-only caseloads

01Research in Context

01

What this study did

The team tracked the families over the study period. Each family had one child with either autism plus ID or ID alone. Parents filled out checklists about the brothers and sisters every six months.

They wanted to know if the mix of autism and ID hits siblings harder than ID alone.

02

What they found

Siblings in the autism-plus-ID group scored higher on worry, sadness, and acting-out. These gaps stayed the same across the whole study.

Younger siblings with an older autistic brother or sister were the most affected.

03

How this fits with other research

LeFrancois et al. (1993) saw more behavior problems in autism siblings 16 years earlier. The new data show the risk is strongest when ID is also in the picture.

Chuthapisith et al. (2007) looked like a contradiction. They found no language delay in preschool siblings of autistic kids. But they only saw problems when the autistic child also had ID, matching the current pattern.

Perez et al. (2015) adds a twist: warm family ties can protect siblings from stress even when broader autism traits run in the family.

04

Why it matters

If your client has both autism and ID, check on the brothers and sisters. Add a quick emotional-behavior screener at intake. Offer parent training that includes sibling support. Warm sibling bonds forecast better outcomes for everyone.

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Hand the parent a free SDQ for each sibling at your next visit.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
49
Population
autism spectrum disorder, intellectual disability
Finding
positive
Magnitude
medium

03Original abstract

Siblings of children with autism may be at greater risk for psychological problems than siblings of children with another disability or of typically developing (TD) children. However, it is difficult to establish whether autism or the presence of intellectual disability (ID) explains the findings in previous research. Mothers rated the emotional and behavioural adjustment of siblings of children with ID with (N = 25) or without (N = 24) autism. Data were also available 18 months later for siblings of children with autism and ID (N = 15). Siblings of children with autism and ID had more emotional problems compared with siblings of children with ID only and with normative data. Three variables were pertinent: increasing age of the child with autism, having a brother with autism, and being younger than the child with autism. Behavioural and emotional difficulties of siblings of children with autism and ID were relatively stable over 18 months.

Autism : the international journal of research and practice, 2009 · doi:10.1177/1362361309335721