Assessment & Research

Use of home videotapes to confirm parental reports of regression in autism.

Goldberg et al. (2008) · Journal of autism and developmental disorders 2008
★ The Verdict

Home videos back up parent claims of lost words but expose missed non-language regression in toddlers with ASD.

✓ Read this if BCBAs who assess toddlers with ASD in clinic or early-intervention settings.
✗ Skip if Practitioners working only with older or non-verbal clients where regression history is already clear.

01Research in Context

01

What this study did

Parents often say their child with autism lost skills. The team wanted to know if those stories match what videos show.

They watched home movies of toddlers with and without autism. Trained coders marked any loss of words, play, or social acts.

02

What they found

Parents and videos agreed when a child stopped talking. They did not agree on lost play or social skills.

In short, mom or dad can recall language loss, but you need video to be sure about other kinds of regression.

03

How this fits with other research

Prigge et al. (2013) pooled 85 studies and found one in three kids with ASD regress, mostly around 18 months. Their number relies on parent report, the same source Porter et al. (2008) now warn can miss non-language loss.

Rojahn et al. (1994) first showed birthday videos spot early autism signs with 91% accuracy. Porter et al. (2008) use the same video method, but to check parent memory instead of making a diagnosis.

Boterberg et al. (2019) later used only parent recall to link regression to later repetitive behaviors. Because Porter et al. (2008) found this recall shaky for non-language loss, Sofie’s findings may under-count kids who lost social skills yet were labeled non-regressors.

04

Why it matters

When you take a developmental history, trust parent report for lost words, but ask for home videos before you decide a child never regressed. A quick clip can change the diagnosis and your treatment plan.

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→ Action — try this Monday

Ask families to bring one pre-loss and one post-loss home video to the intake meeting.

02At a glance

Intervention
not applicable
Design
other
Sample size
70
Population
autism spectrum disorder, neurotypical
Finding
mixed

03Original abstract

The current study examined consistency between parental reports on early language development and behaviors in non-language domains and observer-coded videotapes of young children with and without autism spectrum disorder (ASD) and autistic regression. Data are reported on 56 children (84% male) with ASD (early onset or autistic regression) and 14 typically developing children (57% male) who had home videotapes. Unique to the current study is the independent identification of loss/no loss for each child by both parental report and observer-coded home videotapes and the examination of agreement between these two methods. Results indicate substantial concordance between parental report and observer codes for onset and loss of expressive language, but minimal concordance for loss in non-language domains, suggesting a need for supplementation of parental reports in these areas.

Journal of autism and developmental disorders, 2008 · doi:10.1007/s10803-007-0498-6