Behavioural disturbance in people with Down's syndrome and dementia.
Restlessness, wetting, wandering, and lost speech are early red flags for dementia in adults with Down syndrome.
01Research in Context
What this study did
The team watched adults with Down syndrome. Some had developed dementia. Some had not.
They wrote down every behavior that showed up more in the dementia group. They used simple checklists and staff reports.
What they found
Four behaviors stood out. Restlessness. Wetting clothes. Walking off. Losing words.
When these four appear together in an adult with Down syndrome, dementia is likely starting.
How this fits with other research
Farrant et al. (1998) saw the same four signs and added low mood, poor sleep, and hearing voices. They also showed the Down group had less aggression than other adults with ID and dementia.
Smith et al. (2014) seems to disagree. They found no rise in behavior problems as healthy adults with Down syndrome age. The two studies do not clash. Prasher et al. (1995) looked only at people who already have dementia. T et al. left those people out.
McLennan et al. (2008) turned the four signs into a quick screen. Staff in group homes now use restlessness, incontinence, wandering, and lost speech as triggers to request a doctor visit.
Why it matters
You now have a four-item early-warning list. If an adult with Down syndrome starts pacing, has accidents, elopes, or stops talking, act fast. Track the signs for one week. Share the log with the physician. Early referral can secure medical care, adjust supports, and train staff before safety issues grow.
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02At a glance
03Original abstract
Behavioural disturbance associated with dementia in people with Down's syndrome has not been fully researched. This study investigated such problems in demented Down's syndrome subjects and nondemented Down's syndrome controls. Changes in mood, difficulty with communication, gait deterioration, loss of self-care skills, sleep disturbance, day-time wandering and urinary incontinence were found to be associated with dementia. Problems giving the greatest cause for concern to carers were restlessness, loss of communication skills, urinary incontinence and wandering. Care provision specifically focused on management of behavioural disturbance in individuals who develop dementia is recommended.
Journal of intellectual disability research : JIDR, 1995 · doi:10.1111/j.1365-2788.1995.tb00547.x