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The Internet's Effect on Parental Trust in Pediatrician Diagnosis of Autism and Likelihood of Seeking a Second Opinion.

Pham et al. (2019) · Journal of autism and developmental disorders 2019
★ The Verdict

Online search results that clash with the doctor’s autism verdict quickly erode parent trust.

✓ Read this if BCBAs who meet families right after diagnosis
✗ Skip if Clinicians working in closed systems where parents have no web access

01Research in Context

01

What this study did

Pham et al. (2019) ran a randomized trial with parents. Half saw web pages that disagreed with the doctor’s autism verdict. Half saw pages that agreed.

The team then asked, 'Do you trust the doctor? Will you seek a second opinion?'

02

What they found

Parents who read conflicting online info trusted the doctor less. They were also more likely to say they would look for another opinion.

Parents who read agreeing info stayed confident in the doctor.

03

How this fits with other research

Schreck et al. (2016) showed TV also pushes fad diets over ABA. Tammy’s team now shows the Internet can do the same to a fresh diagnosis.

Legg et al. (2019) found UK parents already feel lost after diagnosis. Add online doubt and trust drops even faster.

Fleury et al. (2019) proved that simply calling a treatment 'evidence-based' lifts parent buy-in. Tammy’s study flips the coin: online noise can erase that buy-in for the diagnosis itself.

04

Why it matters

You can’t assume families arrive trusting the label. Before you plan therapy, ask what they Googled. Show one clear, evidence-based page that matches the doctor’s words. This small step keeps parents on board and saves weeks of second-guessing.

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Open the session by asking, 'What have you read about autism online?' Clear up any mismatch on the spot.

02At a glance

Intervention
not applicable
Design
randomized controlled trial
Population
not specified
Finding
mixed

03Original abstract

This study assessed how web-based information affects parental trust in physician's diagnosis of autism (PDA) and likelihood of seeking a second opinion. Participants of an online survey were randomly allocated to one of three hypothetical scenarios, all were given a vignette of a non-verbal 18-month-old child followed by (1) not viewing Internet results, (2) viewing results suggesting autism, or (3) viewing results suggesting language delay and rated their trust and likelihood of seeking a second opinion. When Internet results contradicted PDA, parents reported less trust in PDA and greater likelihood of seeking a second opinion. Due to the Internet's influence on parents' response to PDA, clinicians should discuss their differential diagnosis with parents, address Internet-related concerns, and recommend trustworthy sources.

Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-019-04140-8