Service Delivery

The Impact of Medical/Behavioral Support Needs on the Supports Needed by Adolescents With Intellectual Disability to Participate in Community Life.

Seo et al. (2017) · American journal on intellectual and developmental disabilities 2017
★ The Verdict

Teens with ID plus medical or behavioral needs require a bigger community-support package than plans usually allow.

✓ Read this if BCBAs writing transition plans for high-schoolers with ID and dual diagnoses.
✗ Skip if Clinicians who only serve young children or adults without developmental disability.

01Research in Context

01

What this study did

Seo et al. (2017) looked at teens with intellectual disability who also need medical or behavioral help.

They asked how much extra community support these teens need to take part in everyday life.

The study mapped needs across life domains like transport, leisure, and health care.

02

What they found

Teens with ID plus extra medical or behavioral needs need a lot more community help.

Without that boost they miss clubs, sports, jobs, and even doctor visits.

The gap is big enough that standard transition plans fall short.

03

How this fits with other research

Leung et al. (2011) and Leung et al. (2014) extend this picture into adulthood.

They show adults with ID want to age in place and move less often when adaptive skills are strong.

Strong early supports, like the ones Hyojeong calls for, may create that later stability.

Gur et al. (2020) is a successor study that tracked the same families later.

It finds caregiver stress and loneliness rise after the teen years, partly because community supports never caught up.

Together the four papers tell one story: plan for heavier supports early, or families pay the price later.

04

Why it matters

When you write a transition IEP or ISP, add a line for "extra medical/behavioral support multiplier."

Use it to justify more hours for job coaching, escort, or health-care navigation.

The move now can prevent crisis placements and caregiver burnout down the road.

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Open the current transition plan, flag any medical or behavioral add-ons, and add two extra community-support hours per week as a trial.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability
Finding
positive
Magnitude
large

03Original abstract

As adolescents with intellectual disability (ID) transition to adulthood, there is a need to plan for effective community-based supports that address the post-school life. There is also a need to plan for the impact of factors (e.g., medical/behavioral support needs) on supports needed for community participation. Data from the Supports Intensity Scale-Adult Version (SIS-A) was used to examine relations between medical/behavior support needs and support needs assessed in the standardized portion of the SIS-A. Results suggested that the presence of medical/behavioral needs had a strong impact on supports needed to participate in the community activities, and that more intensive medical support needs were related to higher support needs in the Home Living, Community Living, and Health and Safety domains.

American journal on intellectual and developmental disabilities, 2017 · doi:10.1352/1944-7558-122.2.173