Autism & Developmental

Activity limitations among young adults with developmental disabilities: a population-based follow-up study.

Van Naarden Braun et al. (2009) · Research in developmental disabilities 2009
★ The Verdict

Severe ID plus multiple impairments—not the diagnosis alone—predicts serious activity limits in young adulthood.

✓ Read this if BCBAs writing transition plans for teens and young adults with developmental disabilities.
✗ Skip if Clinicians who only serve early-childhood or strictly autism-specific cases.

01Research in Context

01

What this study did

Van Naarden Braun et al. (2009) tracked a whole population of young adults with developmental disabilities. They wanted to know who still had big trouble with everyday activities at age 18-25.

The team looked back at records and checked how severe each person's delays were. They counted how many body systems were involved and how much support each person needed.

02

What they found

Only the young adults with severe intellectual disability or several impairments showed serious activity limits. Those with just one isolated delay usually managed fine.

In short, mild or single problems rarely block independence. Big support needs cluster in the same people who have both severe ID and extra medical or sensory issues.

03

How this fits with other research

Van Naarden Braun et al. (2006) used a survey and saw the same pattern earlier: activity limits, not the diagnosis itself, predict leisure gaps. The 2009 follow-up confirms the signal with stronger population data.

Lin et al. (2013) and Amore et al. (2011) moved the question to mid-life and older adults. They still find that severe ID predicts more ADL trouble, but they add that mobility problems overtake ID level with age. The core message—target the severe, multi-impairment group—holds across age bands.

Taylor et al. (2012) show the flip side: 13% of adults with IDD have no daytime activities at all. Kim's work explains why—those idle adults are likely the same severe, multi-impairment group that needs the most creative programming.

04

Why it matters

Stop assuming every young adult with a developmental diagnosis needs heavy support. Use brief screenings to spot severe ID plus extra impairments; pour your resources there. For clients with mild or single delays, shift goals toward college, jobs, and community leisure rather than daily-living drills. This focus saves hours and funding while still protecting the ones who truly need intensive help.

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Pull your caselist, flag anyone with severe ID plus another impairment, and bump their adaptive-skill goals to top priority.

02At a glance

Intervention
not applicable
Design
other
Population
developmental delay
Finding
not reported

03Original abstract

Developmental disabilities are a heterogeneous group of chronic conditions that may result in substantial activity limitations. The type and number of limitations may vary by impairment characteristics. Economic and social constraints may impact activity limitations beyond those attributable to their impairment. Using the International Classification of Functioning (ICF), Disability, and Health conceptual framework, this study tests the hypothesis that activity limitations in young adulthood are not inevitable consequences of childhood impairment. The Metropolitan Atlanta Developmental Disabilities Follow-up Study of Young Adults, a cohort of young adults ages 21-25, is used to examine the relationship between childhood impairment and activity limitations in young adulthood. For young adults with isolated impairment, activity limitations are not probable outcomes. This situation is not the case for those with severe intellectual disability and/or multiple impairments. The type and extent of activity limitations vary by impairment characteristics. With the goal of improving and preventing activity limitations in young adults with various types and severities of childhood impairment, additional research is needed to further identify areas for secondary and tertiary prevention of the consequences of childhood impairment. The conceptual framework of the ICF provides a useful tool for testing hypotheses to pinpoint areas of intervention.

Research in developmental disabilities, 2009 · doi:10.1016/j.ridd.2008.02.004