Service Delivery

The impact of childhood autism spectrum disorder on parent's labour force participation: Can parents be expected to be able to re-join the labour force?

Callander et al. (2018) · Autism : the international journal of research and practice 2018
★ The Verdict

Mothers of school-age kids with ASD exit the workforce at twice the usual rate—schedule around their stamina and push for respite or sleep help.

✓ Read this if BCBAs writing home programs or clinic schedules for families with school-age children with autism.
✗ Skip if Clinicians serving only retirees or families with full-time hired caregivers.

01Research in Context

01

What this study did

Sasson et al. (2018) asked one blunt question: do moms of kids with autism leave the workforce once the child hits school age?

They ran a large survey and held family income, education, and child age constant. This let them isolate autism itself as the reason for quitting work.

02

What they found

Mothers of school-age children with ASD had double the chance of being out of work compared with other moms.

The gap showed up after kindergarten entry and stayed, even when moms had college degrees.

03

How this fits with other research

Davy et al. (2022) pull together dozens of papers and show the same pattern: autism care eats parents’ work and leisure time. Their scoping review includes the 2018 numbers you just read, so there is no clash—only a wider lens.

Dyches et al. (2016) point to a fix. In their survey, single moms who used respite care enjoyed more “daily uplifts” and felt less depressed. Less depression can make holding a job easier, so respite may slow the workforce exit J et al. documented.

Lee et al. (2023) add a day-to-day layer. They tracked moms in real time and found poor sleep wrecked next-day mood and parenting patience. Tired moms may quit jobs simply because they cannot stay awake, tying sleep support to employment hopes.

04

Why it matters

If the mother has already left work, expect daytime availability but also watch for money stress and fatigue. Offer morning sessions when energy is higher. Build respite or sleep-hygiene goals into the behavior plan—insurance may fund these under parent training. When you schedule parent meetings, remember the family may rely on one income; keep travel demands low and offer telehealth. In short, treat workforce reality as part of the treatment context, not a side issue.

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Add one respite or sleep-hygiene target to the parent-training goals and offer session times before 2 p.m.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
negative

03Original abstract

Parental employment is a significant factor in ensuring financial ability to access care for children with autism spectrum disorder. This article aimed to identify the influence of autism spectrum disorder on parental employment and whether childcare access may effect labour force participation using the Longitudinal Survey of Australian Children, with 12 years of follow-up data (2004-2015). Parental employment when the child was aged between 0 and 11 years was assessed. A significantly larger percentage of parents whose children had autism spectrum disorder were not in the labour force when their child was aged between 2-3 and 10-11 years. However, between the ages of 2 and 5 years, these differences were not significant after accounting for maternal and paternal age, education attainment, marital status and mother labour force status prior to birth. Childcare access did not moderate the relationship between autism spectrum disorder and maternal labour force participation. Once children were of schooling age, mothers of children with autism spectrum disorder had up to two times the odds of being not in the labour force compared to other mothers, after adjusting for confounders. Evaluations of new interventions for children with autism spectrum disorder should consider how the proposed service impacts on the labour force participation of parents of children with autism spectrum disorder, particularly when the children are of schooling age.

Autism : the international journal of research and practice, 2018 · doi:10.1177/1362361316688331