Service Delivery

Supporting caregivers of children with developmental disabilities: Findings from a brief caregiver well-being programme in South Africa.

Schlebusch et al. (2024) · Autism : the international journal of research and practice 2024
★ The Verdict

Three ACT classes lifted mood for rural caregivers of kids with delay—fast, cheap, and ready to copy.

✓ Read this if BCBAs running parent training in low-resource or rural settings
✗ Skip if Teams already using full 8-12 week ACT protocols

01Research in Context

01

What this study did

Researchers ran a tiny three-session class for rural South African caregivers. The class used ACT skills—accept thoughts, pick valued action—to lift mood.

Caregivers of kids with developmental delay joined. No control group. Team asked: Is this short dose doable and helpful?

02

What they found

Caregivers liked the course. They said stress dropped and hope grew. A brief, cheap plan looked ready for wider use.

03

How this fits with other research

Samuel et al. (2024) also saw mood gains, but their peer support served older caregivers of adults. Same direction, new age group.

Murthy et al. (2025) asked Indian caregivers what they want. They begged for peer help. The South Africa ACT class gives them one ready model.

Dimitropoulos et al. (2017) tried six telehealth play sessions for kids. Both studies show short plans can work; one reached parents face-to-face, the other kids online.

04

Why it matters

You can steal this blueprint. Three ACT lessons fit a busy clinic day. Use them as a stand-alone booster or tack them onto your parent-training package. No extra gear, just values, breath, and commit. Try it next time caregivers look burned out.

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Open session one: ask caregivers to name one value they hold for their child, then practice a two-minute acceptance exercise.

02At a glance

Intervention
parent training
Design
pre post no control
Population
developmental delay, mixed clinical
Finding
positive

03Original abstract

Young children with developmental disabilities and delays who live in low- and middle-income countries are at significant risk of not reaching their full potential. We know that daily interactions with their caregivers (parents or other people taking care of them) play an important role in promoting their development. However, having a child with developmental disabilities can have a negative impact on carers' mental health and well-being, which in turn can influence their capacity to care for their children. To date, very little attention has been given to the caregivers' capacity to care. The World Health Organization developed a Caregiver Skills Training programme which includes a brief, three-session module that focuses on improving caregivers' well-being and mental health. This well-being programme is based on acceptance and commitment therapy. Acceptance and commitment therapy shows increasing evidence of helping people respond to their stressors, thoughts, feelings and experiences a little differently and commit to small changes that are in line with their personal values. Acceptance and commitment therapy has shown promise in improving feelings of well-being in caregivers of children with developmental disabilities. We adapted the World Health Organization Caregiver Skills Training Caregiver well-being module to suit the South African context. The resultant 'Well Beans for Caregivers' was then delivered to caregivers from a rural, low-resource setting in South Africa. We found the intervention easy to implement, highly acceptable to caregivers and showed promising impacts on caregivers' well-being and mental health. This intervention has the potential to be implemented widely and sustainably to build caregivers' capacity to care for their children.

Autism : the international journal of research and practice, 2024 · doi:10.1177/13623613221133182