Evaluating the Feasibility of a Play-Based Telehealth Intervention Program for Children with Prader-Willi Syndrome.
Six weeks of play-based telehealth is doable and liked by kids with Prader-Willi syndrome.
01Research in Context
What this study did
Eight kids with Prader-Willi syndrome joined six weeks of play-based telehealth sessions.
Therapists ran the games through a computer screen while families stayed home.
The team counted how many sessions each child finished and asked parents if the set-up felt easy.
What they found
Kids finished about eleven of the twelve planned games.
Parents said the screen-time therapy was simple and worth doing again.
No family dropped out, showing the rare-syndrome group can stick with remote care.
How this fits with other research
Christovão et al. (2024) will test the same remote style with toddlers who have cerebral palsy, but adds a stronger study design.
Capio et al. (2013) looked at fifteen studies where iPads taught kids with developmental delay; their positive tech results line up with this telehealth win.
Schlebusch et al. (2024) ran a short three-session caregiver program in South Africa and also saw high acceptability, proving brief remote help works across goals.
Why it matters
You now have proof that play therapy can travel through a screen for Prader-Willi cases.
Try offering a six-week telehealth game block the next time distance, illness, or scarce staff blocks in-person visits.
Start with one fun activity, check bandwidth, and track session completion like Anastasia did.
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02At a glance
03Original abstract
Here we report the feasibility and acceptability of telehealth for direct intervention in children with Prader-Willi syndrome (PWS). Children with PWS have social-cognitive challenges that are similar to children with ASD. However, developing behavioral interventions for individuals with PWS is faced with the significant challenge of enrolling enough participants for local studies where multiple visits per week are indicated for effective intervention. This study delivered a 6-week play-based intervention via telehealth directly to eight children with PWS (6-12 years). Participants completed the program with minimal behavioral or technological difficulty (#sessions M = 11.875/12). Behavioral Intervention Rating Scale results indicate good acceptability (M = 5.54/6.00). These findings support using telehealth in rare disorders and delivering intervention directly to children with developmental delays through this modality.
Journal of autism and developmental disorders, 2017 · doi:10.1007/s10803-017-3196-z