Service Delivery

Family Support of Older Caregivers: Factors Influencing Change in Quality of Life.

Samuel et al. (2024) · American journal on intellectual and developmental disabilities 2024
★ The Verdict

Peer support groups give older caregivers of adults with IDD a measurable lift in quality of life, especially when stress and depression fall.

✓ Read this if BCBAs who serve adults with IDD and their aging parents in community or residential settings.
✗ Skip if Clinicians focused only on early-intervention preschool cases.

01Research in Context

01

What this study did

Samuel et al. (2024) ran a peer-led family support project across one U.S. state. They invited caregivers aged 50 and older who live with an adult with intellectual or developmental disabilities.

The project paired caregivers with trained peer mentors. Meetings happened in community centers and online. The team used surveys before and after to track changes in stress, mood, and overall quality of life.

02

What they found

Caregivers reported better quality of life after six months in the project. The gains were strongest for caregivers who also saw drops in stress and depression.

Having a job and higher family quality of life at the start made the boost even larger. The peer support itself, not extra services, drove most of the change.

03

How this fits with other research

The result lines up with Turban (2018), who saw lower depression when older parents joined more family activities. Both studies show social ties protect caregiver mental health.

Gur et al. (2020) seems to disagree. Their survey found caregiver well-being worsens as adults with ID age. The difference is method: Ayelet had no support program, while Sarah’s group got active peer help. The contradiction fades once you add the intervention.

Schlebusch et al. (2024) offers a conceptual replication. A brief ACT class in South Africa also lifted caregiver mood. Peer groups and short classes differ in form, yet both deliver the same payoff: happier caregivers.

04

Why it matters

You can’t add more hours to a caregiver’s day, but you can add people. Start a monthly peer circle at your clinic or online. Match seasoned caregivers with newcomers. Track stress with a one-page survey every three months. If stress drops, quality of life often follows.

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Invite two veteran caregivers to co-lead a monthly coffee chat for other parents; give them a simple sign-up sheet and a shared calendar.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
82
Population
intellectual disability, developmental delay
Finding
positive

03Original abstract

Understanding factors that can improve the quality of life (QOL) of older caregivers of people with intellectual and developmental disabilities (IDD) is important in broadening participation in family empowerment interventions. The purpose of this study was to identify the factors influencing the QOL of older caregivers (50+) of adults with IDD who participated in a peer-mediated state-wide family support project. The research study used a quasi-experimental research design grounded in the family quality of life (FQOL) framework, with pretest and posttest data gathered from 82 caregivers. Correlation and regression analyses were conducted to identify factors influencing changes in the QOL of study participants. Findings indicated that improvements in caregiver QOL after participating in the project could be explained by caregiver's employment status, increased global FQOL, and decreased caregiver stress and depression.

American journal on intellectual and developmental disabilities, 2024 · doi:10.1352/1944-7558-129.4.308