Service Delivery

Residential characteristics, social factors, and mortality among adults with intellectual disabilities: transitions out of nursing homes.

Hsieh et al. (2009) · Intellectual and developmental disabilities 2009
★ The Verdict

Smaller, homier nursing-home units with rich community ties cut 10-year death risk for adults with ID.

✓ Read this if BCBAs serving adults with ID in nursing homes or large ICFs.
✗ Skip if Clinicians who only work with children in home-based ABA.

01Research in Context

01

What this study did

Kelly and colleagues tracked 330 adults with intellectual disability who lived in nursing homes. They measured the size of each home, how nice the building was, and how much the residents joined community life. Ten years later they looked at who was still alive.

They used medical records and on-site checklists. Age, health status, and daily-living skills were already known, so the team could separate those factors from the home itself.

02

What they found

People in smaller homes died less often. Good lighting, clean halls, and private rooms also helped. The biggest protector was joining clubs, visiting family, or working outside the building.

Even after counting age and illness, residents in the most integrated, smallest places had a clear survival edge over ten years.

03

How this fits with other research

Kozma et al. (2009) pooled 68 studies and found the same pattern: community houses beat large facilities in most life areas. Kelly’s nursing-home data now show the benefit holds inside institutional walls too, not just after leaving them.

Cameranesi et al. (2022) moved adults with profound ID from big institutions to small community homes and saw quality-of-life jump within six months. Their move study extends Kelly’s finding: shrinking the setting and boosting social ties improves both daily happiness and long-term survival.

Matson et al. (2009) warned that adults with ID still have tiny social networks. Kelly’s result turns that problem into action: grow those networks and you may literally add years to life.

04

Why it matters

You can’t change a nursing-home license overnight, but you can change what happens inside. Push for house-size units, schedule regular community walks, and invite families to dinner. These low-cost steps may lengthen the lives of the adults you serve.

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Add one community outing or visitor activity to the weekly schedule for each resident you serve.

02At a glance

Intervention
not applicable
Design
other
Sample size
330
Population
intellectual disability
Finding
not reported

03Original abstract

The present study examined the degree to which residential characteristics and social factors are associated with mortality, after controlling for personal characteristics, among adults with intellectual disabilities who have resided in nursing homes (facilities providing skilled care and related services) at baseline in the Chicago area. Initial assessments were conducted on 330 residents, and 2 follow ups were performed over 10 years. Seventy-one residents had died by the end of the study. The variables examined included personal characteristics of age, gender, intellectual level, health, and adaptive behavior; residential characteristics of type of residence, size of facility, attractiveness of physical environment (cleanliness, conditions, and aesthetic appeal), and diversity of physical environment (personalization of residents' rooms and distinctiveness of all living spaces); and social factors of family involvement and community integration. The results indicated, beyond age, adaptive behavior, and health, that size of residences, residential characteristics, and social factors are related to mortality.

Intellectual and developmental disabilities, 2009 · doi:10.1352/1934-9556-47.6.447