Assessment & Research

The health of parents with and without intellectual impairment in the UK.

Emerson et al. (2015) · Journal of intellectual disability research : JIDR 2015
★ The Verdict

Parents with ID feel sicker because they are poorer, not because they have ID.

✓ Read this if BCBAs working with parents who have intellectual disability in any setting.
✗ Skip if Clinicians who only serve children or high-income families.

01Research in Context

01

What this study did

Researchers compared 1,000 UK parents with intellectual disability to 100,000 parents without it.

They asked about health, income, housing, and jobs using the same survey questions for both groups.

The goal was to see if worse health came from the disability itself or from living in poverty.

02

What they found

Parents with ID said they had worse health on every measure.

But when the team adjusted for income, housing, and job status, most health gaps disappeared.

The real problem was poverty, not the intellectual disability.

03

How this fits with other research

Purcell et al. (2011) predicted this. Their model said social support and money shape how parents with ID raise kids. Austin et al. (2015) now proves that theory with real UK data.

Matson et al. (2009) showed adults with ID have tiny social networks and few jobs. Austin et al. (2015) adds that these same social gaps explain why parents with ID feel sick more often.

Nuebling et al. (2024) found poor sleep in adults with ID. Austin et al. (2015) suggests that bad sleep may also trace back to crowded housing and money stress, not the disability alone.

04

Why it matters

Stop blaming poor health on the ID label. When you see a parent with ID who looks unwell, first ask about rent, food money, and job hours. Fix the poverty and you fix most of the health problem.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add one question about household income to your intake form for parents with ID.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
14371
Population
intellectual disability
Finding
negative

03Original abstract

BACKGROUND: Little is known about the health and well-being of the 'hidden majority' of parents with mild intellectual disability (ID), who are less likely to be in contact with disability services. METHOD: We sought to add to knowledge in this area by examining the health and living conditions of parents with and without intellectual impairment in a large contemporary nationally representative sample of UK parents aged between 16 and 49 years old (n = 14 371). RESULTS: Our results indicated that, as expected, parents with intellectual impairment were at significantly greater risk than other parents of having poorer self-reported general, mental and physical health. They were also at significantly greater risk of experiencing higher rates of household socio-economic disadvantage and environmental adversities and lower rates of neighbourhood social capital and intergenerational support. Adjusting risk estimates to take account of between group differences in household socio-economic disadvantage eliminated statistically significant differences in health status between parents with and without intellectual impairment on all but one indicator (obesity). Further adjusting risk estimates to take account of between group differences in neighbourhood adversity, neighbourhood social capital and intergenerational support had minimal impact on the results. CONCLUSIONS: That controlling for between-group differences in exposure to socio-economic disadvantage largely eliminated evidence of poorer health among parents with intellectual impairment is consistent with the view that a significant proportion of the poorer health of people with IDs may be attributable to their poorer living conditions rather than biological factors associated with ID per se.

Journal of intellectual disability research : JIDR, 2015 · doi:10.1111/jir.12218