Residential care in the community for adults with intellectual disability: needs, characteristics and services.
Community group homes now hold adults with far more complex needs than the system planned for—train staff before move-in day.
01Research in Context
What this study did
Mansell et al. (2002) mailed surveys to every community group home in one English region. They asked managers to describe each adult resident with intellectual disability. The team wanted a snapshot of who now lives in ordinary houses after the big move out of large institutions.
The survey covered behavior needs, health problems, and daily living skills. No one was taken out of the home for extra tests. The answers came straight from staff who work there every day.
What they found
Most small homes now include at least one resident with serious behavior or self-care challenges. The clients are more disabled than planners expected when the houses were first opened.
Complex needs are scattered across many ordinary streets, not gathered in one place. Staff must handle seizures, aggression, and feeding tubes without on-site nurses.
How this fits with other research
Salmi et al. (2010) later showed the same trend in the United States. Between 1988 and 2008, the share of people in small settings jumped from 29% to 73%. The move to community houses kept going after J et al. sounded the warning.
Hagopian et al. (2005) zoomed in on weekend life inside these homes. They found only 3.8 hours of planned leisure per resident, mostly TV. Taken together, the picture is clear: people with higher needs live in the community, but daily quality is still thin.
Petry et al. (2007) give the numbers behind the behavior load. About 1 in 10 adults with intellectual disability show serious challenging behavior. That small slice now lives in regular neighborhoods, so every staff team needs behavior tools ready.
Why it matters
If you supervise or train staff in group homes, expect mixed-ability houses. One resident may need full hand-over-hand dressing while another needs a behavior plan for self-injury. Build your training calendar around that reality: teach safe physical guidance, seizure first aid, and brief functional assessment. Ask for extra supervision hours up front, not after a crisis. When you write care plans, list the closest BCBA and nurse contact on the front page. Community living is here to stay; our preparation has to match the needs already inside the door.
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02At a glance
03Original abstract
BACKGROUND: The pattern of residential services for people with intellectual disability in England has changed dramatically since 1971, with many more places being made available in residential homes in the community. The aim of the present study was to assess the needs and characteristics of residents and features of all the residential homes provided by a national charity. METHOD: Assessments of adaptive behaviour, problem behaviour and social impairment were completed by staff who knew residents well; information about costs and staffing was provided from central records. RESULTS: A significant proportion of residents have important care needs relating to their skills, their behaviour and their social abilities. Residents with these needs are dispersed throughout services, so that a large majority of services include one or more residents with relatively complex needs. CONCLUSIONS: Compared with services in the late 1980s, these services care for a much more disabled client group. Since individuals with high levels of particular needs are typically distributed throughout services, a very high proportion of services require staff who have relatively advanced skills. Current national plans do not adequately address this need and case management arrangements may encourage the re-creation of more institutional services. DECLARATION OF INTEREST: The first author is a Trustee of the charity.
Journal of intellectual disability research : JIDR, 2002 · doi:10.1046/j.1365-2788.2002.00440.x