Service Delivery

Racial/Ethnicity Disparities in COVID-19 Worry for Caregivers of Adults With Intellectual and Developmental Disabilities.

Asif et al. (2024) · Intellectual and developmental disabilities 2024
★ The Verdict

Latino caregivers of adults with IDD carried extra pandemic worry about running out of food—so put them at the top of your crisis call list.

✓ Read this if BCBAs running adult day or in-home programs in multicultural regions.
✗ Skip if Clinicians who only serve children or single-ethnicity caseloads.

01Research in Context

01

What this study did

Asif et al. (2024) sent a survey to caregivers of adults with intellectual or developmental disabilities in Texas.

They asked how worried each caregiver felt about COVID-19 and about running out of food or supplies.

The team then compared answers from Latino caregivers with answers from White caregivers.

02

What they found

Latino caregivers scored much higher on worry about food and supply shortages.

Their open-ended comments also told of missed day-programs and extra duties at home.

White caregivers, in the same survey, reported lower levels of this specific worry.

03

How this fits with other research

Wang et al. (2021) already showed that Black and Latinx adults with IDD face distrust and confusion about where to get health care.

Laiba’s 2024 results extend that picture: when a crisis hits, the same families worry first about basic survival items.

Arana et al. (2019) found a seeming reverse pattern—Hispanic women with ID actually receive more mammograms than White peers.

Together the studies show that disparities are not one-directional; Latino caregivers can experience both extra worry and, in other contexts, extra service use.

04

Why it matters

During any emergency—pandemic, storm, or power outage—check on your Latino IDD families first. Ask, “Do you have enough food, diapers, meds for the next week?” A quick supply list and a backup vendor number can cut worry faster than a long behavior plan.

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02At a glance

Intervention
not applicable
Design
survey
Sample size
206
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

This study investigated the racial/ethnic differences in COVID-19-related worry amongst family caregivers of adults with intellectual and developmental disabilities (IDD) living in Texas using the COVID-Related Thoughts and Behavioral Symptoms-Adult Version (COV-TaBS-A) questionnaire. Two hundred and six caregivers completed the survey. Compared to White caregivers, Latino caregivers were more likely to be very concerned about having enough food and supplies (adj OR 3.41, 95% CI [1.50, 7.74]) when adjusting for being that sole caregiver and using provider services. In free text questions, caregivers described feeling overwhelmed by additional responsibilities, disruptions in home health services, and concerns about their loved ones' wellness. Study findings can be used to strategize support for caregivers of adults with IDD during pandemic/emergency situations.

Intellectual and developmental disabilities, 2024 · doi:10.1352/1934-9556-62.6.446