Service Delivery

Parents' experiences of home-based applied behavior analysis programs for young children with autism.

Grindle et al. (2009) · Journal of autism and developmental disorders 2009
★ The Verdict

Parents love the gains from home-based EIBI but need steady help managing fatigue, guilt, and home chaos.

✓ Read this if BCBAs running or supervising home-based early intensive programs for preschoolers with autism.
✗ Skip if Clinicians who only provide center-based or school-based ABA with no parent-delivered hours.

01Research in Context

01

What this study did

Tyrer et al. (2009) talked to 22 parents running home-based ABA programs for their preschoolers with autism. They used open interviews to learn what daily life felt like during early intensive behavioral intervention.

All families lived in the U.K. and received 20–30 hours per week of therapist-led teaching in their living rooms. The researchers asked about joys, hassles, and advice parents would give other families.

02

What they found

Parents said the program helped their child talk more, play better, and tantrum less. They also felt closer as a couple and more hopeful about the future.

Yet every parent listed heavy stress: cluttered homes, little privacy, constant scheduling, and worry about paying for staff. Half felt guilty when they could not keep up the full 30 hours.

03

How this fits with other research

Ruppel et al. (2021) extends these findings. They showed that just two BCBA coaching visits per week let parents cut problem behavior and boost communication at home, proving that fewer hours can still work.

Benson (2012) looked at brothers and sisters. Siblings in home-ABA homes scored the same on behavior and self-concept as kids in families without ABA, easing fears that the busy house harms siblings.

Benderix et al. (2006) seems to contradict our paper: parents placing their child in a group home first felt grief and guilt. The difference is setting. Home-based EIBI gives parents control and daily wins, while residential placement removes the child and creates different emotions. Same diagnosis, opposite service, opposite feelings.

04

Why it matters

You can praise home-based EIBI while still planning for parent burnout. Start small, teach parents to tag team, and schedule true days off. Ask each month: "What part of this schedule hurts most?" Then adjust hours, shift therapist times, or add respite. When parents feel heard, they keep the program going and the child keeps gaining skills.

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Add a five-minute parent check-in at every session start: ask what felt hardest last week and change one schedule detail today.

02At a glance

Intervention
comprehensive aba program
Design
qualitative
Sample size
53
Population
autism spectrum disorder
Finding
positive

03Original abstract

Although much research has documented the benefits to children with autism of early intensive behavioral intervention (EIBI), little has focused on the impact of EIBI on families. Using a semi-structured format, we interviewed 53 parents whose children had received 2 years of EIBI to obtain detailed first person accounts of the perceived benefits and pitfalls of running a home program, and the impact of EIBI on family life and support systems. In general, parents were positive about EIBI, its benefits for them, their child, and the broader family. Interviews also, however, revealed some of the more challenging aspects of managing home-based EIBI. The implications of these findings for more supportive interventions for families on home programs are discussed.

Journal of autism and developmental disorders, 2009 · doi:10.1007/s10803-008-0597-z