Lives of quality in the face of challenge in Israel.
Israeli families of kids with disabilities report strong home life but weaker community support, reminding BCBAs to target external resources in treatment plans.
01Research in Context
What this study did
Researchers asked 125 Israeli parents of children with mixed disabilities to rate their family quality of life. They used the Beach Center Family Quality of Life Scale. The survey covers five areas: family interaction, parenting, emotional well-being, physical/material well-being, and disability-related support.
Parents answered 25 questions on a 1-5 scale. The team wanted to see how Israeli families score compared to other countries.
What they found
Families gave high marks to inside-the-family items like love and communication. They scored lower on outside items like school services and community help. Overall, the average was 3.9 out of 5. This shows resilient, moderately high quality of life despite daily challenges.
The gap between inside and outside scores was large. It tells us families feel strong at home but want better external support.
How this fits with other research
Lee et al. (2008) found big drops in quality of life for autism families. Keintz et al. (2011) shows smaller drops. The difference is culture and sample. Li-Ching sampled mostly autism clinics in unreported regions. S et al. sampled mixed disabilities across Israel where military and community supports are common.
Losada-Puente et al. (2022) also found large unmet needs in young autism families. Again, diagnosis focus and age range explain the harsher picture. The Israeli survey includes older kids and varied diagnoses, softening the blow.
Chaki et al. (2025) zooms in on Bedouin autism families in Israel. Grandmother support lifted both family function and child skills. This extends S et al. by showing one clear path to raise the inside-family scores even higher.
Why it matters
You can share these numbers with worried parents. Most families do well at home, so build on that strength. When you write goals, put extra effort into linking families to outside resources like respite, inclusive clubs, or smoother school transitions. Those are the spots that still need work.
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02At a glance
03Original abstract
PURPOSE: The purpose of this study is to describe and analyse the quality of life of Israeli families raising a child with a disability while challenged with all the usual demands of family life. METHODS: Respondents were main caregivers of 103 children with disability receiving services at Beit Issie Shapiro, a service agency in Israel. The respondents completed the Family Quality of Life Survey-2006 which operationalises family quality of life (FQOL) as a construct in nine domains of family life. FINDINGS: The findings show an underlying pattern within the domains that define FQOL. In general, the findings indicate that the families are strongly challenged to meet the needs of a special child and raise a family meeting the needs of all its members. The respondents report that, within the limits of available opportunities, they had achieved well and they are satisfied with their attainment. In general, our findings seem to reflect in our respondents a sense of resilience and an ability to manage family challenges to achieve a reasonably high FQOL. Domains described as internal to the family were rated highly in terms of FQOL as compared to domains external to the family. CONCLUSION: The Family Quality of Life Survey-2006 was found to be a valuable tool for identifying and evaluating factors that enhance FQOL. Further research is needed to develop application models for integrating this instrument into the agency's service and evaluation repertoire.
Journal of intellectual disability research : JIDR, 2011 · doi:10.1111/j.1365-2788.2011.01475.x