"It makes me a better person": The unique experiences of parenting multiple children who experience neurodevelopmental disability.
Moms of multiple children with NDDs feel drained and empowered at the same time—treat both truths as real and connect them to peer support early.
01Research in Context
What this study did
Thompson-Hodgetts et al. (2024) talked with mothers who are raising two or more children with neurodevelopmental disabilities. The team used open interviews to learn how these moms see their own lives.
Questions focused on daily demands, feelings of stress, and moments of growth. Mothers described both hard days and proud moments in their own words.
What they found
Every mom said she was worn out, yet every mom also said she felt stronger. Knowing more about disability helped them speak up for their kids.
They felt cut off from some friends, but closer to other families who live the same reality. Exhaustion and empowerment showed up side by side.
How this fits with other research
Anderson et al. (2020) found the same push-pull in moms of single autistic daughters. Both studies show stress and insight can live together, so Sandy's work conceptually replicates that pattern with a wider mix of diagnoses and more than one child.
Smith et al. (2010) used daily diaries to track moms of teens and adults with autism. Those mothers also logged high fatigue yet kept warm moments with their kids. Sandy extends this mixed picture backward into the multi-child, mixed-diagnosis years.
Benson (2016) showed that large support networks protect moms' mental health over time. Sandy's moms echoed this: they felt isolated until they found other disability families. The qualitative detail in Sandy adds the 'how' to R's numeric 'what.'
George-Levi et al. (2021) reported lower life satisfaction when hope is low. Sandy's moms voiced the same risk, yet they also described rising hope once they joined disability communities. The studies sound opposite until you see hope is the hinge.
Why it matters
When you meet a mom raising several kids with NDDs, expect both fatigue and expertise. Ask, "What keeps you going?" and link her to parent groups before burnout peaks. Treat her knowledge as data, not anecdote, and fold it into goal setting.
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02At a glance
03Original abstract
BACKGROUND: Much research has explored how raising a child with a neurodevelopmental disability influences parents' well-being. However, little research has focused on the unique experiences of parenting multiple children with neurodevelopmental disabilities. We explored the unique experiences of parenting multiple children with neurodevelopmental disabilities with a focus on mothers' well-being and social participation. METHODS: Ten mothers who parent multiple children with neurodevelopmental disabilities participated in semi-structured interviews. Interviews were analyzed using a reflexive thematic approach. RESULTS: Three themes were identified: 'Knowledge is power' described positive influences of enhanced disability knowledge and advocacy with each child who experienced disability. 'Shifts in wellbeing' acknowledged these mothers' exhaustion, decreased time for self-care, and invisible work, yet also increased feelings of empowerment, purpose and empathy for others. '(Dis)Connection and engagement with others' reflected struggles of balancing responsibilities, social and community participation, and experiences with isolation. Yet, mothers' also experienced enhanced disability community and family connections, and a sense of meaning and purpose. CONCLUSIONS AND IMPLICATIONS: Findings highlighted challenges, and many rewarding and unique experiences of parenting multiple children with neurodevelopmental disabilities. Health, education and social service practitioners are encouraged to acknowledge parent's challenges, but also celebrate and draw on families' strengths and knowledge.
Research in developmental disabilities, 2024 · doi:10.1016/j.ridd.2024.104697