Daily experiences among mothers of adolescents and adults with autism spectrum disorder.
Daily stress stays high for moms of teens and adults with autism, so adult services must include caregiver support.
01Research in Context
What this study did
Smith et al. (2010) asked mothers of teens and adults with autism to keep a simple diary. They wrote down how much time they spent on chores, childcare, and rest. The team then compared these notes to national averages for moms of typical kids.
The goal was to see if the daily load stays heavy after the school years end.
What they found
Mothers of adolescents and adults with autism did more chores and hands-on care. They also felt more tired and stressed each day.
Yet they reported the same number of warm moments and volunteer hours as other moms. The stress is real, but joy is still present.
How this fits with other research
Seltzer et al. (2010) measured the same moms’ stress hormones in 2010. Flatter daily cortisol backed up the diary reports, showing the body keeps score.
Lotfizadeh et al. (2020) seems to disagree: parents of toddlers flagged for autism also report high stress. The age gap explains the clash. Stress hits early and stays late, so support must span the lifespan.
Sticinski et al. (2022) adds that single caregivers feel even less support than married moms. If you serve a solo parent, expect extra strain.
Why it matters
Your treatment plan is only half the picture. When the client is a teen or adult, ask Mom how she is sleeping and sharing the load. Link her to respite, evening social groups, or future-planning workshops shown by Eussen et al. (2016) to lift caregiver confidence. A less drained mom means better follow-through on your programs.
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02At a glance
03Original abstract
In the present study, 96 co-residing mothers of adolescents and adults with an autism spectrum disorder (ASD) participated in an 8-day diary study and reported on their daily experiences. In comparison with a nationally representative sample of mothers of children without disabilities, mothers of adolescent and adult children with ASD spent significantly more time providing childcare and doing chores, and less time in leisure activities. Fatigue, arguments, avoided arguments, and stressful events were also more common among mothers of individuals with ASD. However, mothers of individuals with ASD reported similar levels of positive interactions and volunteerism as the comparison group. Daily experiences were subsequently related to well-being in both groups. These findings highlight the need for family support services.
Journal of autism and developmental disorders, 2010 · doi:10.1007/s10803-009-0844-y