Interventions Benefitting Young Autistic Children.
Family navigators need four core skills—autism knowledge, diagnosis support, peer links, and service connections—to open doors for families in low-resourced areas.
01Research in Context
What this study did
Bourque et al. (2025) talked with families and navigators in low-resourced areas. They asked what pieces a family-navigation program needs so families can reach autism services.
The work is qualitative. They did not test a drug or count behaviors. They gathered stories to learn what navigators must know and do.
What they found
Four must-haves stood out. Navigators need deep training on autism facts. They must help parents accept the diagnosis. They must link families to peer mentors. They must connect families to therapy and funding.
Without these pieces, families stay stuck on waitlists or drop out.
How this fits with other research
Sánchez-Luquez et al. (2025) looked at 17 studies and saw the same thing. Navigation lifts caregiver knowledge and service use, yet no one has shown it improves child skills.
Pizur-Barnekow et al. (2021) built a four-goal interview guide that navigators can use right after diagnosis. Bourque et al. (2025) expand that idea into a full training plan.
Klein et al. (2024) surveyed Black and multiracial families and found provider bias and cultural gaps. Kathy’s team echoes this, showing navigators must tackle both knowledge and cultural barriers.
McKenzie et al. (2015) showed that African American families may delay diagnosis because of distrust. Kathy’s call for peer mentors and trust-building fits this older finding.
Why it matters
If you run or fund navigation programs, use these four pillars to design training. Check that your navigators can explain autism facts, guide parents through diagnosis acceptance, introduce them to other families, and walk them to therapy doors. Measure parent engagement, not just child progress, until we know more.
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02At a glance
03Original abstract
Family navigator programs (i.e., programs to train family navigators) are becoming increasingly common among families of children with autism. Family navigators (i.e., individuals who help families access evaluations and/or services) may be parents of children with autism themselves or health professionals. Extant research has shown that family navigators can help families receive timely diagnostic evaluations and initial services. Yet, the development of family navigator programs is unclear; by exploring the input of families of children with autism, such programs can be responsive to family needs. In this study, we extend the extent literature by exploring the lived experiences of 12 parents of autistic children from low-resourced communities to inform the development of a family navigator program. Findings demonstrated that navigator programs need to prepare navigators to address barriers such as limited knowledge and difficulty accepting an autism diagnosis. Navigator programs should teach navigators to use strategies with families including educating families about services and connecting families with peer support. Program content should reflect direct services, government services, and advocacy strategies. Notably, for true improvements to service access for all autistic children, systemic changes are also needed in the service delivery systems. Implications are discussed.
Education & treatment of children, 2025 · doi:10.1016/j.acap.2013.12.004