Service Delivery

Hospitalization burden among individuals with autism.

Lokhandwala et al. (2012) · Journal of autism and developmental disorders 2012
★ The Verdict

Autistic patients stay longer and pay more—so push hospitals for autism-ready care and early discharge plans.

✓ Read this if BCBAs who support autistic clients that may need medical or psychiatric inpatient care.
✗ Skip if Clinicians who work only in outpatient clinics with medically stable clients.

01Research in Context

01

What this study did

Tasneem and colleagues looked at every hospital stay in a large U.S. database. They compared autistic patients with non-autistic patients. They asked: who stays longer and who pays more?

02

What they found

Autistic people stayed in the hospital 55% longer. Their bills were also higher. The extra days and dollars add up fast for families and insurers.

03

How this fits with other research

McMaughan et al. (2023) zoomed in on teens and young adults. They found autistic youth are hospitalized for mental-health crises 11 times more often than peers with other long-term illnesses.

Siegel et al. (2014) gives hope. A special inpatient psychiatry unit cut severe irritability in 78% of autistic kids. Long stays can still end well if staff know autism.

Reyes et al. (2019) moved the lens to the ER. Autistic teens do not visit the ER more, but when they do the bill is the highest—usually for psychiatric emergencies.

04

Why it matters

Longer stays mean more stress, missed school, and bigger bills. Use this data when you ask hospitals for single rooms, quiet spaces, or staff trained in autism. Start discharge planning on day one. Link families to outpatient crisis teams before the next emergency.

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Add a hospital-readiness section to your crisis plan: list calming items, communication aids, and a hospital contact who knows autism.

02At a glance

Intervention
not applicable
Design
other
Sample size
26000
Population
autism spectrum disorder
Finding
negative
Magnitude
small

03Original abstract

The objective of this study was to assess the inpatient care burden among individuals with autism using the 2007 Health Care Utilization Project Nationwide Inpatient Sample [HCUP-NIS]). There were ~26,000 hospitalizations among individuals with autism in 2007, with an overall rate of 65.6/100,000 admissions. Rates of hospitalizations were the highest among individuals with autism aged 10-20 years, males, having household income >$63,000, and with private insurance, respectively. In terms of hospital characteristics, rates were the highest in hospitals in large urban areas, located in the Northeast region, and with teaching status, respectively. Individuals with autism had significantly higher LOS (6.5 vs. 4.2; p < 0.0001) and total charges ($24,862 vs. $23,225; p < 0.0001) as compared to those without autism.

Journal of autism and developmental disorders, 2012 · doi:10.1007/s10803-011-1217-x