Service Delivery

Brief report: Quantifying the impact of autism coverage on private insurance premiums.

Bouder et al. (2009) · Journal of autism and developmental disorders 2009
★ The Verdict

Autism insurance mandates raise private premiums by only about 1%—a bargain compared with the high cost of crisis care.

✓ Read this if BCBAs who lobby for insurance coverage or write prior-authorization requests.
✗ Skip if Clinicians working in Medicaid-only settings where mandates do not apply.

01Research in Context

01

What this study did

Nikolov et al. (2009) asked a simple question: if states force private insurers to cover autism care, how much will premiums go up?

They ran an actuarial model using national claims data. The model assumed more kids would access ABA, speech, and occupational therapy once coverage became law.

02

What they found

The headline number is small. Premiums would rise about 1%, with a range from 0.19% to 2.31%.

For a family paying $500 a month, that is roughly an extra $5.

03

How this fits with other research

Barrett et al. (2015) extends the story. They tracked real UK teens for six months and found one autistic student can rack up £11,029 in school and health costs. The 1% premium bump looks tiny next to these downstream bills.

Lokhandwala et al. (2012) and McMaughan et al. (2023) show why the bills pile up. Autistic people stay in the hospital 55% longer and land in mental-health crises 11 times more often. Early coverage that prevents crises could save more than the 1% it costs.

Cimera et al. (2009) adds a twist from the same year. VR agencies spent the most on autistic adults yet saw them work fewer hours. The 1% premium projection does not include lost wages, so the full economic picture is bigger than the model shows.

04

Why it matters

Use the 1% figure when you talk to funders, families, or HR departments. It is a concrete, low-stakes number that unlocks doors to ABA, speech, and mental-health care. Pair it with hospital-cost data to show that coverage is cheaper than crisis care.

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→ Action — try this Monday

Add the 1% premium line to your next authorization letter: 'The projected premium increase is roughly one dollar per hundred—less than a cup of coffee.'

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Many states are considering legislation requiring private insurance companies to pay for autism-related services. Arguments against mandates include that they will result in higher premiums. Using Pennsylvania legislation as an example, which proposed covering services up to $36,000 per year for individuals less than 21 years of age, this paper estimates potential premium increases. The estimate relies on autism treated prevalence, the number of individuals insured by affected plans, mean annual autism expenditures, administrative costs, medical loss ratio, and total insurer revenue. Current treated prevalence and expenditures suggests that premium increases would approximate 1%, with a lower bound of 0.19% and an upper bound of 2.31%. Policy makers can use these results to assess the cost-effectiveness of similar legislation.

Journal of autism and developmental disorders, 2009 · doi:10.1215/03616878-28-5-883