Health Care Utilization for Privately and Publicly Insured Children During Autism Insurance Reform.
Insurance reform helped a little, but private plans still cover fewer autism services than Medicaid.
01Research in Context
What this study did
Zhang et al. (2022) asked parents how insurance reform changed care for kids with autism. They compared families with private plans to those with public Medicaid plans. Parents filled out surveys about coverage, service use, and stress.
What they found
Kids with private insurance still had lower odds of having services covered. Yet both groups said they got about the same amount of actual treatment. The more severe the child's autism, the more upset private-insurance parents felt.
How this fits with other research
Wang et al. (2013) saw the same gap before reform: Medicaid kids got four times more therapy visits than privately insured kids. Wanqing shows the gap in coverage remains even after new laws.
Loughrey et al. (2014) found race, parent education, and stress also block access. Insurance type is now one more barrier to add to that list.
Yingling et al. (2023) warn that many counties lack enough RBTs. Even if coverage improves, workforce shortages can still stall care.
Why it matters
You can’t assume a child’s private plan will pay. Call the insurer first, get pre-authorization in writing, and teach families to do the same. Track denials and share them with state autism advocates; real data speeds future reform.
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02At a glance
03Original abstract
We examined the effects of insurance type on health service utilization among children with autism spectrum disorder (ASD) following autism insurance reform by analyzing the most recent data from the 2019 National Survey of Children's Health. Families with private insurance were less likely to report that their health insurance covered needed services compared to families with public insurance. Privately versus publicly insured children were not significantly different in receiving behavioral or medication treatment, or in parental frustration in efforts to obtain services. However, parents' frustration escalated with increased ASD severity. Findings from this study suggest the need for continuing to improve implementation of health insurance reform legislation and providing adequate ASD-related services for children with private insurance.
Journal of autism and developmental disorders, 2022 · doi:10.1176/appi.ps.20150020