Service Delivery

Frailty as a Predictor of Institutionalization Among Adults With Intellectual and Developmental Disabilities.

McKenzie et al. (2016) · Intellectual and developmental disabilities 2016
★ The Verdict

Frailty more than doubles the risk that adults with IDD will lose their community placement.

✓ Read this if BCBAs who coordinate services for adults with IDD living at home or in supported living.
✗ Skip if Clinicians who work only with young children or already-institutionalized clients.

01Research in Context

01

What this study did

McKenzie et al. (2016) followed 3,034 adults with intellectual or developmental disabilities who lived in the community. They tracked how a frailty index based on 42 health deficits predicted who would later enter long-term care.

The team used a quasi-experimental design and watched the group for several years.

02

What they found

Higher frailty scores doubled the chance of nursing-home admission. The link stayed strong even after the researchers controlled for age, sex, and level of disability.

In plain words, the more health problems stacked up, the faster the person moved from home to an institution.

03

How this fits with other research

Eggleston et al. (2018) used the same older-adult cohort and found that having four or more chronic conditions also doubled mortality risk. Together, the two papers show that both frailty and multimorbidity are red flags in adults with ID.

Oppewal et al. (2018) dug into causes of death in that cohort and found respiratory disease leading the list. Frailty may be the common pathway that both pushes people into care and later leads to fatal pneumonia.

Moss et al. (2008) charted a 30-year drop in large-institution use. McKenzie et al. (2016) now warn that frailty can still reverse those gains by pulling aging adults back into facilities.

04

Why it matters

You can add a quick frailty count to your intake or annual review. Tally things like falls, weight loss, incontinence, and multiple meds. If the count is high, start a care-planning conversation with the medical team and family before a crisis referral to long-term care occurs.

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Add a 30-second frailty checklist to your next parent or staff meeting and flag anyone with three or more health deficits for a medical follow-up.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
3034
Population
intellectual disability, developmental delay
Finding
negative
Magnitude
large

03Original abstract

Adults with intellectual and developmental disabilities (IDD) frequently become frail earlier than the general population, resulting in higher care needs. This population is at risk for institutionalization, or re-institutionalization, into long-term care (LTC). Using a retrospective cohort design to follow 3,034 individuals (18-99 years) living in Ontario, Canada, and assessed with the Resident Assessment Instrument-Home Care, individuals were characterized with a frailty index (FI) for persons with IDD. Survival analyses determined differences in rates of admission to LTC and survival in the community. Frail individuals had greater rates of admission than non-frail individuals, adjusted HR = 2.19, 95% CI [1.81, 2.64]. The FI predicts institutionalization.

Intellectual and developmental disabilities, 2016 · doi:10.1352/1934-9556-54.2.123