Family carer and professional perceptions of the potential use of telehealth for behavioural support.
Families and pros welcome telehealth for IDD behavioral support as long as you blend it with live visits and prep the tech first.
01Research in Context
What this study did
Howard et al. (2023) asked families and professionals how they feel about using telehealth for behavioral help. They talked to people caring for kids with intellectual or developmental disabilities.
The team ran focus groups and interviews. They wanted to know what would make remote support work and what might get in the way.
What they found
Both groups see promise in telehealth. They like the idea of getting help without long drives or wait lists.
They still want some in-person visits. A mix of online and face-to-face feels safest and most useful.
How this fits with other research
Nguyen et al. (2025) proves it can work. Their telehealth coaching let 29 of 30 adults with IDD finish dental exams without sedation. That real-world success backs up the hope L et al. heard in their interviews.
Perez et al. (2015) shows big behavior gains. Parents coached online cut problem behavior by 93% in 17 autistic toddlers. Again, the positive feelings L et al. captured line up with hard data.
Lambrechts et al. (2009) explains why families want change. Back then, mothers said support was too generic, hard to reach, and low quality. Telehealth is now viewed as a way to fix those old problems.
Rosencrans et al. (2021) saw the same craving. During COVID, unplanned online contacts jumped as families chased help. The openness L et al. reports is not new—it spiked when services went remote.
Why it matters
You can stop asking "Should I offer telehealth?" Stakeholders already say yes if you mix it with in-person visits and check tech comfort first. Start with a short Zoom meet to gauge Wi-Fi, device, and confidence. Then schedule one live session for every two remote ones. This hybrid plan matches the barrier-fix families asked for and mirrors the winning models in Nguyen et al. and Perez et al. (2015).
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02At a glance
03Original abstract
BACKGROUND: Telehealth (i.e. the use of technology across distance) is widespread in many fields. Although its use for behavioural support for people with intellectual or developmental disabilities (IDD) is emerging, there are no known studies examining stakeholder perceptions of this. METHODS: A four-round Delphi consultation was conducted with 11 professionals and six family carers of children with IDD to generate consensus on what would influence participants' use of telehealth for behavioural support. Data were collected prior to the coronavirus pandemic. RESULTS: Thirty-six items reached consensus for professionals (26 advantages and 10 disadvantages/barriers) and 22 for family carers (8 advantages and 14 disadvantages/barriers). A range of solutions were also identified for the disadvantages/barriers. CONCLUSIONS: Participants were willing to use telehealth for behavioural support. However, disadvantages/barriers need to be addressed, and guidelines relating to the use of telehealth in this field are needed. We report a number of practice recommendations including combining telehealth with in-person supports where possible, incorporating video technologies, and considering client perspectives and confidence with telehealth methodologies.
Journal of intellectual disability research : JIDR, 2023 · doi:10.1111/jir.13026