Evolving Definitions of Autism and Impact on Eligibility for Developmental Disability Services: California Case Example.
Tighter autism criteria can quietly erase waiver eligibility—check state rules every time you update a diagnosis.
01Research in Context
What this study did
Morrison et al. (2017) looked at one California boy who lost his state disability waiver after doctors updated the autism checklist. The team traced how new wording in the DSM made him ineligible overnight.
They used his story as a case to show that small rule changes can boot real people off service rolls.
What they found
The boy met the old autism rules but not the new ones, so California dropped his DD services. The authors warn that every state can hit families with the same surprise if criteria shift again.
How this fits with other research
Wong et al. (2009) earlier found no wide coding drift in California files; most label changes were honest, not cheats. Morrison et al. (2017) agree fraud is rare, yet show honest kids can still lose aid when rules tighten.
Williams et al. (2002) and Coo et al. (2008) proved that much of the autism boom came from kids switching over from intellectual-disability labels. The 2017 case flips that coin: the same switch can now roll backward, stripping supports.
Papazoglou et al. (2014) saw DSM-5 cut ID diagnoses by 9%. E et al. echo the warning for autism, showing the same shrinkage can happen there.
Why it matters
Before you reassess a client, pull your state’s waiver checklist side-by-side with the DSM-5. If the two don’t line up, flag the risk to the family and document why the person still needs hours. One extra page in the report can keep services in place.
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02At a glance
03Original abstract
When establishing eligibility for developmental disability (DD) services, definitions of specific diagnostic conditions, such as autism, impact policy. Under the Medicaid home and community-based waiver program, states have discretion in determining specific program or service eligibility criteria, the nature of supports to be provided, and the number of individuals to be served. Individuals with DD, their families, and advocates have pushed to expand eligibility and improve the quality of services and supports received. This article uses a California legal case to explore the impact on individuals seeking eligibility for DD services when states rely on evolving diagnostic criteria for autism spectrum disorder. Recommendations are made for a more equitable and consistent approach to disability eligibility determination.
Intellectual and developmental disabilities, 2017 · doi:10.1352/1934-9556-55.3.192