Assessment & Research

Trends in autism prevalence: diagnostic substitution revisited.

Coo et al. (2008) · Journal of autism and developmental disorders 2008
★ The Verdict

One-third of the autism surge in BC schools was kids re-branded from other special-ed codes, not new cases.

✓ Read this if BCBAs who write funding requests or explain caseload growth to school teams.
✗ Skip if Clinicians only interested in treatment data, not prevalence trends.

01Research in Context

01

What this study did

The team looked at British Columbia school records from 1996 to 2006.

They counted how many kids carried the special-ed code for autism each year.

They also tracked codes for intellectual disability, speech delay, and other needs.

02

What they found

Autism prevalence in schools jumped from 12 to 43 kids per 10,000.

At least one-third of that jump came from re-labeling.

Children once coded as intellectually disabled or language delayed now carried the autism code.

03

How this fits with other research

Williams et al. (2002) saw the same swap in California a decade earlier.

Their autism numbers rose while intellectual-disability numbers fell in lock-step.

Wong et al. (2009) later checked California state files and found no such shift, but they looked at different records.

School data show re-labeling; state disability files do not.

Ouellette-Kuntz et al. (2014) then showed the Canadian climb kept going after 2006, so the trend did not stop.

04

Why it matters

When you read rising autism rates, remember one-third may be kids we already served under a different name.

Use this fact when you talk to administrators.

Funding and staffing requests should count the whole special-ed population, not just the autism line.

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→ Action — try this Monday

Pull last year’s re-evaluation list and note any code changes from ID or SLI to ASD—add those to your rationale for next year’s staffing ask.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

There has been little evidence to support the hypothesis that diagnostic substitution may contribute to increases in the administrative prevalence of autism. We examined trends in assignment of special education codes to British Columbia (BC) school children who had an autism code in at least 1 year between 1996 and 2004, inclusive. The proportion of children with an autism code increased from 12.3/10,000 in 1996 to 43.1/10,000 in 2004; 51.9% of this increase was attributable to children switching from another special education classification to autism (16.0/10,000). Taking into account the reverse situation (children with an autism code switching to another special education category (5.9/10.000)), diagnostic substitution accounted for at least one-third of the increase in autism prevalence over the study period.

Journal of autism and developmental disorders, 2008 · doi:10.1007/s10803-007-0478-x