Autism & Developmental

Family functioning in families with older institutionalized retarded offspring.

Kazak (1989) · Journal of autism and developmental disorders 1989
★ The Verdict

Families whose adult child with ID lives in an institution feel just as close and no more stressed than other families.

✓ Read this if BCBAs who counsel families considering residential placement for adults with ID.
✗ Skip if Clinicians only serving young children living at home.

01Research in Context

01

What this study did

Researchers compared the families who had an adult son or daughter with intellectual disability living in a state institution.

They matched these families to the families with typical adult kids.

Both groups answered questions about stress, marriage happiness, and how close they felt as a family.

02

What they found

The two groups felt the same level of stress and marital satisfaction.

Surprise: the institutional group said their family felt tighter and more cohesive.

Having the adult child out of the home did not break family bonds; it seemed to help them.

03

How this fits with other research

Demello et al. (1992) later asked only fathers and found more coping efforts and money worries, yet still good adaptation.

That study widens the lens from whole-family closeness to dads’ daily coping, keeping the upbeat tone.

Cregenzán-Royo et al. (2018) looked at moms in the community and linked high expressed emotion to child behavior problems.

At first glance that seems opposite: Mazur (1989) says low stress, Olga says high emotion.

The gap fades when you see the settings differ: kids lived at home in Olga’s work, not in an institution.

Totsika et al. (2010) later showed that, once daily-living skills are held equal, autism plus ID brings no extra psychiatric risk in older adults.

Together the papers hint that placement outside the home can lower day-to-day strain while family ties stay strong.

04

Why it matters

You can reassure parents that choosing residential care for an adult with ID is not a family failure.

Use the saved energy to build warm routines like weekend visits or shared meals.

Track both parent stress and family closeness; one can stay flat while the other grows.

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Add a question about family cohesion to your parent interview; note if placement outside the home is on the table.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
69
Population
intellectual disability
Finding
null

03Original abstract

Psychological distress, marital satisfaction, family adaptability, and cohesion are explored in 31 families with mentally retarded (MR) institutionalized offspring (late adolescence and young adulthood) and 38 comparison families. Multivariate analyses indicate no differences between the groups, although univariate analyses point to higher levels of cohesion in the families with MR offspring and the importance of the construct of adaptability in understanding family functioning. The results are discussed in terms of the adaptive coping mechanisms of the families with MR offspring and the implications of this for intervention, research, and policy.

Journal of autism and developmental disorders, 1989 · doi:10.1007/BF02212854