Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder.
Arab American caregivers feel only light stigma yet face community distance and tight gender roles—invite both parents and use peer mentors.
01Research in Context
What this study did
Habayeb et al. (2020) talked with Arab American mothers and fathers who raise children with autism.
The team asked open questions about stigma, culture, and how the community treats the family.
They coded the answers into themes to see what helps or hurts these caregivers.
What they found
Parents felt only low-to-moderate shame; most held balanced Arab and American values.
Still, many said neighbors keep distance and that gender roles decide who goes to meetings.
Moms run therapy visits; dads handle outside jobs—both feel left out of planning at times.
How this fits with other research
Wallace-Watkin et al. (2023) pooled 18 studies and named stigma a top barrier for all underserved families. Serene’s Arab families fit that big picture, yet show less intense shame than Black families in Granieri et al. (2020).
Lamba et al. (2022) heard similar stories from expat moms in UAE: first comes confusion, then strong peer support saves the day. The two studies echo each other across oceans.
Alnahdi et al. (2025) widened the lens to Arab mothers of children with intellectual disability and found emotional wellbeing their weakest spot. Serene’s themes on gender roles help explain why moms carry that extra emotional load.
Why it matters
You can lower barriers by asking every Arab American parent—mom and dad—what cultural values guide their choices. Offer flexible meeting times and male-friendly spaces so fathers join. Pair new families with parent mentors; peer support works here and in the Gulf. These small moves turn moderate stigma into active teamwork.
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02At a glance
03Original abstract
Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families.
Journal of autism and developmental disorders, 2020 · doi:10.1007/s10803-019-04218-3